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June 2016

Migraine and Headache Awareness Month Social Media Challenge

MHAM16SMC250June is Migraine and Headache Awareness Month, the month of the year when we put extra effort into raising awareness about Headache disorders including Migraine, Cluster Headaches, New Daily Persistent Headache, Post-Traumatic Headache, and literally hundreds of other Headache disorders.

For the last few years, we've had an Awareness Month Blogging Challenge during which we set topics or "prompts" for each day of Awareness Month, and participating bloggers each wrote their take on that topic. This year, to expand the Blogging Challenge to include more people, it has become the Migraine and Headache Awareness Month Social Media Challenge. For bloggers used to the Migraine and Headache Awareness Month Blogging Challenge, hopefully, you'll use these prompts as you have in previous years. This isn't meant to take away the blogging challenge. It's evolved to involve even more people.

Here's how it works:

  • Below, I'm going to post either a fact about a Headache disorder for each day of June.
  • To participate in the Social Media Challenge, you need to use the fact in your blog and /or on one or more other social media platform - Facebook, Twitter, Instagram, etc., using the hashtag #MHAM.
  • You don't have to manage to participate every day to accept the challenge. We know that some of us simply won't feel up to it every day, so participate as much as you can.
  • Wherever you can, please use the Social Media Challenge logo (without changing it), which you can see here. I'll add it in a few different sizes at the end of this post so you can get it.

I'm going to post all of the daily prompts now so you'll have them in advance. Here they are, complete with hashtags:

  1. 75% of the world's adults had a #Headache or #Migraine in the last year. #MHAM
  2. The majority of people w/ #Headache and #Migraine are not diagnosed. #MHAM
  3. Accurate diagnosis of #clusterheadaches can take years. #MHAM
  4. @WHO says #Migraine is the 8th most disabling disease in the world. #MHAM
  5. #Migraine can and does kill through stroke and suicide. #MHAM
  6. Patients with #NDPH usually know the exact date their daily #headache started. #MHAM
  7. Social Stigma increases the burden of living with #Migraine. #MHAM
  8. #Migraine is a neurological disease caused by genetics and a hypersensitive brain. #MHAM
  9. #Headache Disorders cost the U.S. economy more than $31 billion each year. #MHAM
  10. #Migraine significantly increases risks for other serious diseases incl heart disease. #MHAM
  11. Pain of #clusterheadaches usually starts over one eye. #MHAM
  12. #Headache disorders are the most prevalent neurological disorders #MHAM
  13. #Migraine affects all ages from pre-verbal children to the elderly. #MHAM
  14. There is no cure for #clusterheadaches or #Migraine. #MHAM
  15. @WHO says severe #Migraine attack as debilitating as quadriplegia. #MHAM
  16. Most people see up to 5 doctors before an accurate #Migraine diagnosis. #MHAM
  17. Suicide attempts are 3 times more likely in people with #Migraine with aura. #MHAM
  18. Depression and suicide are common in patients with #clusterheadaches. #MHAM
  19. #Headache and #Migraine patients educated about their disorder have better outcomes. #MHAM
  20. #Migraine is no longer considered vascular; it's neurological. #MHAM
  21. There are NO treatments originally developed for #clusterheadaches. #MHAM
  22. Neurologists aren't always #Headache and #Migraine specialists and vice versa. #MHAM
  23. @WHO reports #Migraine responsible for at least 1% of total US medical disability. #MHAM
  24. Most med students get only 4 hours education on ALL #Headache disorders. #MHAM
  25. #Headache disorders are responsible for nine percent of all US lost labor productivity. #MHAM
  26. A #Migraine attack isn't a #headache. It can occur with NO headache at all. #MHAM
  27. #Clusterheadaches have earned the nickname suicide headaches. #MHAM
  28. There are no diagnostic tests to confirm #Migraine or most other #Headache disorders. #MHAM
  29. People with #ChonicMigraine have a #Migraine more often than not. #MHAM
  30. #Migraine causes Americans to miss 113 million work days per year. #MHAM

Here are some hashtags you may want to use. These have all been defined at www.tagdef.com.

  • #MHAM Migraine and Headache Awareness Month
  • #clusterheadaches Cluster Headaches
  • #migraine Migraine
  • #headache Headache
  • #chronicmigraine Chronic Migraine
  • #hemiplegicmigraine Hemiplegic Migraine

Thanks go to Tammy Rome for her help in putting together a prompt for each day. Thanks, Tammy!

If you have any questions, please email me by using the email link at the top of the right column of this page.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 

 

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Sunday Thoughts on Living with Migraine

Embrace-HopeGood afternoon to my extended Migraine family. I hope this Sunday afternoon finds you feeling as well as possible.

The strange weather of this past winter and this spring has been really tough on Migraineurs for whom weather changes are a Migraine trigger. Almost nobody has escaped unscathed. Since weather changes are one of those dastardly unavoidable triggers, I'm at a loss to offer many suggestions to help. One thing I can tell you is that truly effective preventive treatments, while they can't help us avoid every Migraine, can often help even with weather-triggered Migraines.

My own Migraines have gone back and forth between episodic and chronic, mostly because issues with other health conditions made it necessary to reduce the dosage amounts on some of my preventive medications. Thankfully, they're back to episodic thanks to not one, but two treatments that are effective for me. Botox treatments helped me go from 25 Migraine and Headache days a month down to six to eight days a month. Last summer, when the Spring TMS device became available, I started using it both to treat my Migraines when the occur and twice a day for prevention. Amazingly, it's been aborting most of my Migraines without medications. That's more than I had hoped for, but it got even better. With the Spring, I'm down to only one or two Migraines a month! Dr. Watson and I have been extending the period of time between Botox treatments to see what would happen, and it appears that the Spring is doing such a wonderful job of Migraine prevention that we may be able to discontinue the Botox. If you want to know more about the Spring, take a look at Spring TMS for Migraine - Progress and Insurance Update.

 

AHMA-is-hope250There's a lot going on in the Migraine community right now. Are you familiar with the American Headache and Migraine Association (AHMA)? AHMA is a nonprofit organization for patients with Migraine and other Headache disorders as well as their family members and friends. It was started for two main reasons:

  1. Patients who were looking for an organization where we can all come together - an organization run by patients, not staff or doctors.
  2. To address a valid question asked by a staff member of the National Institutes of Health. At a meeting of NIH personnel and Migraine and Headache researchers that I was invited to, an NIH staffer was talking about other diseases that get more NIH research funding and saying that a huge reason for that is that those diseases have patient organizations that work hard to raise awareness and also some research funding. The next thing she said to me was, "If your patients don't care, why should we?"

AHMA is still a fairly young organization, but it's growing. Right now, we're in the midst of election of officers, and our annual patient conference is coming up on June 12. Annual dues and conference registration are kept extremely low. Interested? Check out the AHMA web site.

 

NMAHM2016B250June will soon be upon us, and it's Migraine and Headache Awareness Month. This year's theme is Rule Your Headache Disorder.

We'll be having a social media challenge that's really easy to participate in via Facebook, Twitter, or a blog if you write one. I'll have more details for you on that soon.

Purple is our awareness color, so get out your purple, and wear it proudly.

If you have ideas for raising awareness, please share them. You can leave a comment on this post to share your ideas with the rest of us. Please remember that every little awareness effort counts. They all add up to something much bigger, and raising awareness reduces stigma.

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 

 


4th Migraine and Headache Patient Conference - Why Are You Waiting?

2016Conf-325The date will soon be upon us for the American Headache and Migraine Association's (AHMA) fourth annual conference for patients, family members, and friends. This year's conference will be held on Sunday, June 12, in San Diego, California.

There are great sessions scheduled including:

  • What's New and Coming Up in Migraine and Headache Treatments
  • Living with Headache Disorders and the Psychological Fall-Out
  • The Future Role of Technology in Headache Medicine
  • Integrative Headache and Migraine Treatment
  • The Three Forms of Advocacy

The speakers for this year's conference include:

  • Dr. Elizabeth Seng
  • Dr. Richard Lipton
  • Dr. Rob Cowan
  • Dr. Brian McGeeney

There will also be a special session for family members and friends who need information and support for helping those they care about who are living with Migraine and other Headache disorders.

Morning and afternoon breaks and a reception at the end of the day will give you time to meet and get to know other conference attendees. Lunch is included in the registration fee, and the annual AHMA membership meeting will be conducted during lunch.

Frangance-Free-100

 

Since fragrances are such a strong trigger for so many people with Migraine, this is a fragrance-free event. Please do not wear perfume, cologne, aftershave, scented lotions, or other products with fragrance.

 

San Diego is a busy place in June. So, why are you waiting? Register for the conference and make your hotel reservations now!

For more information, or to register for the conference, please visit AHMA's conference page.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.