Previous month:
August 2016
Next month:
October 2016

Learning about migraine improves self-esteem | Brain Storm

Worth-a-lookI love to read articles and blog posts about Migraine. There are a lot of interesting pieces of content out there. This one, written by Tammy Rome, is one I want to share with you. It looks at learning about Migraine from a different and fascinating point of view. Enjoy!

Headache experts tell us that a wave of electrical activity called cortical spreading depression occurs long before we recognize the signs of an impending migraine attack. It starts in the brainstem and spreads everywhere. The brainstem is responsible for many autonomic reflexes that are disturbed during migraine, such as balance and coordination. This process also affects speech, vision, and hearing centers of the brain. Several neurotransmitters are adversely affected, too. Serotonin, in particular, takes a nose-dive. Understanding this helps me recognize all the symptoms of migraine, not just the headache.
Before I learned this,  I would blame the attack on my bad mood instead of recognizing the mood changes as part of the constellation of migraine symptoms. I would question whether all the strange symptoms were just a figment of my imagination or a sign that I truly was a hypochondriac. Now that I know migraine is a neurological disorder, the weird symptoms make sense. There are biological reasons for all of it. This knowledge is a good thing. By recognizing the symptoms I no longer question my sanity or blame myself for non-existent character flaws that are really just symptoms of the disease...

Read the full post, Learning about migraine improves self-esteem.

via brainstorm.tammyrome.com

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 

     

Save


A Day to Fund Migraine and Headache Research - Join Us!

R4R-M4ROn Saturday, October 8, we have several opportunities to help raise funds for Migraine and Headache research:

Runnin' for Research will be holding 5-K runs and 1-mile walk walks in three locations:

  1. Morgantown, West Virginia;
  2. Parkville, Missouri (just outside Kansas City); and
  3. Jeffersontown, Kentucky (just outside Louisville).

There is also a virtual runner option for all three of the Runnin' for Research events for those who can't be there in person to participate. To register to walk or run, in person or virtually, visit the Runnin' for Research upcoming races page.

Also on October 8, Miles for Migraine has a 5-K run, 10-K run, and 2-mile walk in Philadelphia. To register for the Miles for Migraine event, visit their registration page.

About Runnin' for Research and Miles for Migraine:

Runnin' for Research works with patients, doctors, and institutions to hold run and walk events to raise funding for research for Migraine, Cluster Headaches, and other headache disorders and to raise awareness of these disorders. Events can be held in cities and towns of varying sizes.

Miles for Migraine holds events in large cities that have teaching hospitals with fellowships in "headache medicine." Funds raised by these races are used to support research and the education of headache and Migraine experts in these cities.

Please Join Us:

For more information, or to register, visit:

Runnin' for Research

Miles for Migraine

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 

Save

Save

Save


Experimental Drug Reduces Migraine Days by Half — Pain News Network

Worth-a-lookGreat news for Migraine patients. The new CGRP drugs now in clinical trials for Migraine are showing great promise. Currently, there are no medications on the market that were originally developed for Migraine prevention. All of the medications we use for that purpose are hand-me-down medications — medications that were developed for other conditions, then accidentally found to help with Migraine. It's beyond time that medications be developed specifically for Migraine prevention, so this is great news indeed.

An experimental injectable drug reduces the number of migraine days by 50 percent or more in patients who suffer from chronic migraine, according to the results of a new study released by drug makers Amgen and Novartis.

The Phase II study of AMG 334 -- also known as erenumab – involved 667 patients who suffered an average of about 18 migraine days per month.  A reduction of 50% or more in monthly migraine days was observed in four out of ten patients taking a 140 mg dose of erenumab. Patients taking a 70 mg dose had a 40% reduction in migraine days compared to a placebo drug. 

View the full article, Experimental Drug Reduces Migraine Days by Half.

via www.painnewsnetwork.org

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

Save

Save


Life with Migraine - This Day - Video and Song | TED-Ed

Migraine-Lesson-ChalkAnyone who lives with Migraine disease knows that living with it means living with far more than the physical burden. It also means living with a lack of understanding among much of the general public and, sometimes, even those closest to us. It also means living with the social stigma associated with Migraine. This Ted-Ed lesson can be used to help educate others and reduce the stigma. For Migraineurs, it's a validating piece that everyone can appreciate.

This Day offers a look at a day with chronic Migraine that's realistic without making viewers uncomfortable. Anyone can relate to a wish for a day "when I am actually OK." This is a perfect video to share with those who need a better understanding of what it's like to live with this disease. A great job by Anna Eidt, Ian Macmillan, and Shawn Beckwith. Enjoy the song written and performed by Anna.

View Life with Migraine - This Day - Video and Song | TED-Ed.

via ed.ted.com

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 


Sunday Thoughts on Living with Migraine – Types of Migraine

Sunday-BouquetGood morning to my Migraine and Headache Family. I hope you're doing as well as possible today — that the weather is pleasant where you are, and that your head is being kind to you. 💕

When discussing Migraine or other headache disorders, the International Headache Society's International Classification of Headache Disorders (ICHD) is the gold standard for classifying and diagnosing headache disorders. The ICHD is now in its third edition (ICHD-3) and can be found online. There are sound, logical reasons for using standardized diagnoses:

  • It helps keep everyone "on the same page."
  • It simplifies matters if and when patients need to seek care from someone other than their regular health care providers.
  • These criteria give researchers a standardized set of criteria so that research is more uniform and valuable.
  • It's far easier for discussion purposes if everyone is using the same term to describe the various disorders.

Unfortunately, even some doctors don't use the ICHD-3 diagnoses on a regular basis. This is most likely due to how little doctors are taught about Migraine and other headache disorders during medical school. Unless a doctor is a Migraine and headache specialist or a neurologist, they may not be aware of the ICHD-3.

There are several patients who write about Migraine and headache online and/or are patient advocates for Migraine and headache patients. When we come across a discussion where a form of Migraine is being discussed, and it's not a standard ICHD-3 diagnosis, we generally give people information about the ICHD-3 and the "official" forms of Migraine. If you're part of one of those discussions, and one of us posts information for you, please don't be offended. We're just trying to offer information and support. Continuing to learn about our Migraines is one of the most valuable tools we have for working effectively as treatment partners with our doctors, and we all want to offer you the most accurate information possible.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 

 

Save


The drug industry might finally have an answer for migraines | PBS NewsHour

Worth-a-lookAnyone interested in new Migraine treatments will be interested in this article...

It often starts with the aura.

Zig-zagging lines come into view, everyday light becomes searingly bright, and vision starts to slip. These are signals that a debilitating migraine is on its way.

“It’s like you’re possessed,” said Lorie Novak, who has suffered from chronic migraines since childhood. “I almost feel separate from my body, like it’s just this painful shell around me that’s not me.”

Novak, now in her 60s, is one of the roughly 35 million Americans who suffer from migraines. There are few effective treatments, and no new drugs have been developed since the early 1990s

via www.pbs.org

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.


Triptans and SSRI or SNRI for Migraine - Serotonin Syndrome Info

Migraine-Lesson-ChalkThe FDA issued a warning about serotonin syndrome that had many migraine patients in a panic. It warned of this "life-threatening" syndrome, although there wasn't a single death from it on record. The debate blurred the line between medication warnings and medication contraindications, increasing confusion rather than clarifying matters. The FDA does need to issue warnings from time to time. That said, this one seemed to be extreme and perhaps exaggerated.

This lesson includes video from an American Headache Society expert - information that gives us some background information to discuss the issue rationally with our doctors, pharmacists, and other health care providers.

Check out this Ted-Ed Migraine lesson: Triptans and SSRI or SNRI for Migraine - Serotonin Syndrome Info.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

Save


Aphasia - The Migraine Symptom That Can Rob You of Your Words | TED-Ed

Worth-a-lookMany of us with Migraine experience aphasia as a Migraine symptom. This video lesson offers interesting comprehensive information about aphasia that can help us understand what's going on in the brain when aphasia strikes as a Migraine symptom as well as more in-depth information about aphasia.

Aphasia - The Migraine Symptom That Can Rob You of Your Words | TED-Ed

Language, written and spoken, is an enormous part of life, but aphasia can temporarily or permanently disrupt it. Temporary aphasia can be a symptom of a Migraine attack, beginning as early in a Migraine as the prodrome phase. Susan Wortman-Jutt details aphasia in detail. Not all of this video relates to aphasia as a Migraine symptom, but it's all very interesting and educational.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.