Sunday Thoughts on Living with Migraine: After Awareness Month

TulipThoughtsGood afternoon, and happy Sunday to my extended Migraine and Headache Family!

Migraine and Headache Awareness Month (MHAM) was in June, but the need to raise awareness never ends. Lack of awareness in the general public results in:

  • the perpetuation of myths and misconceptions about Migraine, Cluster Headaches, and other Headache disorders
  • the continuation of the social stigma associated with Headache disorders
  • discomfort and reduced quality of life for people who have Headache disorders

Advocacy-All-Year-300So it's important that we strive to raise awareness all the time, not just during Migraine and Headache Awareness Month.

Since you're reading this, it's a given that you spend some time online. Social media outlets such as Facebook and Twitter are magnificent ways to share information and raise awareness! They're easy to use, and quite a bit can be accomplished with minimal effort. That makes them great tools for those of us whose time and energy are limited by chronic Headache disorders.

One easy way to keep track of awareness and advocacy opportunities is to keep an eye on my Facebook page. I'm constantly posting links to educational articles about Migraine and other Headache disorders, Migraine and Headache treatments, and events such as Headache on the Hill and Migraine and Headache Awareness Month. Simply sharing these links on your Facebook page is a quick and simple way to help raise awareness.

If you're looking for the most recent information about Migraine and other Headache disorders and their treatments as well as support and advocacy and awareness info, check out our HealthCentral Migraine Management group on Facebook.

A don't-miss source of information and support is the American Migraine Foundation's Move Against Migraine campaign. You can check it out on the American Migraine Foundation web site or through the widget below.

There are many ways to raise awareness year-round. I've barely scratched the surface here. If you have ways to raise awareness that you'd like to share, please leave a comment, and tell us about them. 

Live well,

 because a migraine is NOT "just a headache"
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Enter the Frames of Mind Migraine Art Contest

Frames-of-MindThe American Migraine Foundation and Allergan are collaborating on an exciting new campaign that gives people with Migraine an outlet for their creativity that will be used to raise awareness about Migraine disease.

Frames of Mind is an interactive campaign to promote awareness of the impact that Migraine can have on patients' everyday lives. People living with this often debilitating condition are encouraged to submit original artwork depicting how the symptoms of migraine personally affect them.

Dr. David Dodick, Chairman of the American Migraine Foundation said,

"We are excited to collaborate with Allergan on this eye-opening campaign that we hope will unify the migraine community. While the symptoms of Migraine can occur in a myriad of unique ways, we hope to underscore the common needs of this community and empower patients to better manage their condition, advocate for access to care and appropriate treatment options, and inspire funding for research into the causes and better treatments for Migraine."

People living with Migraine are encouraged to create art submissions that visually depict how the various symptoms of Migraine affect them — both physically and emotionally. Digital, high resolution versions of the original works of art should then be submitted via email to FramesOfMind@toniclc.com, noting the artist's name, location, and contact information.

Select submissions chosen by notable migraine experts will be displayed at the 59th Annual Scientific Meeting of the American Headache Society from June 8 – June 11, 2017 at the Westin Boston Waterfront in Boston and other Migraine-related events throughout the remainder of 2017. Additionally, art submissions will be displayed on the My Chronic Migraine Facebook Page.

David Nicholson, Chief R&D Officer at Allergan, commented:

"Allergan is dedicated to supporting the millions of Americans living with the debilitating effects of Migraine and educating the public about this condition in order to encourage proper diagnosis and treatment. In addition to our focus on advancing research and treatment options, we are committed to offering education and support that will make a true difference in the lives of this patient community."

The timing of this campaign is perfect since the works of art will begin being displayed during Migraine and Headache Awareness Month.

Where does your artistic talent lie? Painting, sketching, sculpting, photography? Whatever talent you have, now's the time to use it to help promote Migraine awareness. Get your submissions in now to FramesOfMind@toniclc.com.

FramesofMind_callforEntries

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"
Visit MigraineDisease.com


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Limited Edition Migraine Awareness Items Available Through 10/25

Migratude-Campaign1I've designed some limited edition Migraine awareness shirts and a mug available now through TeeSpring. The goal of this campaign is to raise awareness, not $$, so I've set the prices at the lowest allowable by Teespring:

  • The Hanes tagless short-sleeved teeshirt is $14.25.
  • The Gildan 8 oz. heavy blend hoddie is $23.99
  • The Gildan 6.1 oz. long-sleeved tee is $16.99
  • The mug is $9.99.

Items ordered will be printed and shipped when the campaign expires on Tuesday, October 25. They will be shipped directly to you from TeeSpring and should arrive in four to seven business days.

These items would make super holiday gifts, and this design won't be sold again.

Although I've set the prices on these items as low as I can, there will be a bit of residual profit coming my way - maybe $20. Regardless of what the amount is, I will donate it to the American Migraine Foundation.

 

I hope you'll consider using these items to raise Migraine awareness!

 

For more information on these items, or to place an order, please go to www.teespring.com/migratude1.

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

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Donation to American Migraine Foundation for Migraine and Headache Research

AMF-R4R-AHMAIn San Diego last month, it was my great pleasure to present a donation of $17,434 for Migraine and Headache research to Dr. David Dodick, Director of the American Migraine Foundation.

The donation came from two Runnin' for Research runs/walks held in Morgantown, West Virginia, and Louisville, Kentucky, last year. Runnin' for Research had placed the race profits with the American Headache and Migraine Association (AHMA) for disbursement.

Although the name is the American Migraine Foundation (AMF), the AMF does a great deal to help people with all Headache disorders, including implementing a program to assist in the development of headache clinics in academic medical centers and the American Registry for Migraine Research (ARMR). ARMR is a database containing information about patients diagnosed with migraine and other headache disorders—including their age, gender, headache type and characteristics, severity and frequency of attacks, treatment history, family history, and other medical information including physical samples (known as a biorepository) from each patient for genetic analysis. ARMR is a valuable tool to advance research to help scientists understand the causes of migraine and other headache disorders and move closer to finding safer, more effective treatments to eventually find a cure.

The mission of Runnin' for Research is "to improve the quality of life of those who suffer with headache and migraine disorders through fundraising for quality research and the promotion of patient empowerment, community awareness, and local and national advocacy."

The American Headache and Migraine Association is the patient arm of the American Headache Society. AHMA's mission is "to help those affected by Migraine and other Headache Disorders find and use our voices to empower patients, family members, friends, and care partners. Through education, support, advocacy, and research we will bring hope and banish the feelings of hopelessness that too often accompany these disorders. We will work to dispel myths and misconceptions, thereby working to eliminate the stigma we face all too often and replace it with compassion and understanding."
    

AMF-Donation-160609

For more information on any of these organizations, see their web sites:

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 

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