Migraine Blogger Fly With Hope Inspires Me

FlyWithHopeThe online Migraine community has some superlative bloggers. They're intelligent, engaged, insightful, expressive, and eloquent. Today, I offer this comment to Kelly of Fly With Hope...

Dearest Kelly,

Your blog entry, Five Things That Changed my life, was indeed magnificent, and I thank you for sharing it.

Over the years, you've shared some of your Migraine journey with me, and I'm so proud of you for your strength, courage, and peristence. I know how far you've come in being an empowerd patient, a treatment partner, an active participant in your health care instead of a passive bystander. I also know how difficult that is to accomplish. Wow, darlin. You rock!

I too found A Third Space for Migraine Patients helpful. I'd gotten away from my "third space," and it helped lead me back.

Shutting out what others think of me and listening to what I think of myself is something else that I need to do more of, and I appreciated the reminder in your post.

You're so on-target with this point from your statement, "Learning I had responsibility and a say in my treatment." Brava, Kelly!

Anyway, I wanted to take this opportunity to thank you for inspiring me and to tell you how happy I am that you've come so far.

All my best,
Teri

HAWMCBannerThis post was written as part of NHBPM – 30 health posts in 30 days: http://bit.ly/vU0g9J

Live well,


 

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© Teri Robert, 2011
Last updated November 17, 2011


Migraines and Frustration - April Blog Carnival

BlogCarnival125 Welcome to the April
Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the March carnival is "What frustrates you most about living with a headache disorder or Migraines?"
 

Check out this month's great collection of blogs in Migraines & Frustration: April Headache & Migraine Disease Blog Carnival .

Live well,


 

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© Teri Robert, 2011
Last updated April 13, 2011


March Migraine & Headache Blog Carnival: Life Hacks

BlogCarnival125 Welcome to the March
Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the March carnival is "Life Hacks: Tweaking Work & Life to Deal with Migraines"
 

Check out this month's great collection of blogs in Life Hacks: Tweaking Work and Life to Deal with Migraines.

Live well,


 

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© Teri Robert, 2011
Last updated March 15, 2011


Migraine Life Hacks: Dealing Better with Migraines

MigraineLifeHacks Diana Lee has chosen a great topic for the March, 2011, Migraine blog carnival, "Life Hacks: Tweaking Work & Life to Deal with Migraines." Over the years, I've written several articles about various aspects of this topic. It's really one of my favorite topics because it's one way we can actually exercise control over this darned disease.

It so often seems that Migraine disease controls us. Too often, it does, BUT if there's one good thing about this disease, it's that there are indeed things we can do to control our lives that in some cases help control the disease. Even those that don't control the disease, can make it easier to live with the disease by our taking better control of our own lives.

So, let's get down to taking a look at some "live hacks" that can make it easier to live with Migraines. These fall into two categories, those related to Migraine triggers and those not directly related to triggers.

life hacks elated to triggers:

  • Trigger identification and management is an essential part of Migraine management. Some triggers are avoidable, some are not. One we know what our triggers are, we can avoid some Migraines if we find that we have any avoidable triggers. If our triggers aren't avoidable, knowing what they are won't help us avoid Migraines, but it can at least help us be better prepared for them.
  • If you're tyring to identify your triggers, keeping a Migraine diary can be extremely helpful. You can find more information and download a free diary workbook in Your Migraine and Headache Diary.
  • For some lucky people, many Migraines can be avoided by avoiding certain foods or beverages. Is that you? Do you know if any foods or beverages are triggers for you? You can learn more and download a free work book in Managing Migraine - Migraine Trigger Foods.
  • Are loud music and crowded clubs a trigger for you? Ask your friends to spend an evening with you at home where you can have quieter music and a less crowded environment.
  • Is alcohol a trigger? Club soda with a twist of lime tastes great, especially when it means you won't have a Migraine!
  • MSG a trigger? Then you know you can't order Chinese take-out unless it can be ordered without MSG. You know you can't eat that bag or Doritos. Which is more important? Eating the junk or feeling well? You decide.
  • Messed up sleep. Too much, too little, disrupted, and poor quality sleep can all be Migraine triggers. If they're a problem for you, then you know you're going to pay for it if you don't pay attention to your sleep. Zzzzzzzzzzzzzzzzzzzzzzzz.

life hacks not directly related to triggers:
These are mostly organizational suggestions that can make things much easier when you live with Migraines:

  • Keep your prescriptions filled so you don't run out of medications.
  • Shop ahead. Make a short list of things that you really need to have in the house when you don't feel well. Make sure you're always well stocked on these items. It's helpful if they're items that can be kept - canned or frozen, for example.
  • Cook ahead. When you cook a good, healthy meal, think about doubling the recipe and freezing an extra meal. It will come in handy when you're in a hurry or when you don't feel well.
  • Whatever you can plan ahead or do ahead, do it. When we do this, we give ourselves huge breaks. It's such great feeling when events are planned ahead, when holiday shopping is done well in advance.
  • Dump the guilt. Nobody is perfect. If you miss an event or a few details, the world is not coming to an end.
  • Be realistic. This is one of the biggest favors any of us can do ourselves. Be realistic in our expectations of ourselves and others. Look at the overall picture and don't let small details ruin things.

In the end, how effective Migraine life hacks can be is really up to each individual Migraineur, and that's going to vary from time to time. There are going to be times when we get angry and don't want to compromise because of having a disease. You know what? That's perfectly reasonable, when it happens occasionally. We all feel that way, sometimes.

In my day-to-day communications with Migraineurs from all over the world, I'm seeing a growing group of Migraineurs to whom I'd like to offer some encouragement and perspective when it comes to these Migraine life hacks. I think there are elements of today's fast-paced life that are building unrealistic expectation:

  • Cell phones mean we don't have to wait until we get home to phone people.
  • Text messaging means we don't even have to wait until we can call someone to tell them something.
  • Social networking sites such as Facebook and Twitter give us "instant" updates on what people are doing.
  • Email means we often don't have to wait for a regular postal letter to be delivered for "mail" communication.

These things make it easy for us to feel that we "can have it all" and forget that living fully, well, and successfully is usually a series of compromises. Nobody gets their way all the time. Maybe I shouldn't be, but I'm surprised when I get an email or a Facebook message from someone who has avoidable Migraine triggers such as foods, alcohol, smoke, loud music, or crowded bars and is upset because they have to give up certain social events or suffer with a Migraine. Now, I'm not so old that I can't remember hating to miss a big party or an important family event. Still, if I had a choice between going to a New Year's Eve party and drinking club soda with lime or drinking alcohol and being deathly ill with a Migraine, that seems to me to be an easy choice. If I knew chocolate was going to give me a level 10 Migraine, I think I'd prefer to abstain from it.

Anyway, what I'm really trying to say is that each of us has to decide what it's worth to us to avoid Migraines and to live better when they do strike. To me, it's well worth avoiding known triggers and some advance planning.

Do you have migraine life hacks to suggest? If so, please leave a comment and share them!

Live well,


 

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© Teri Robert, 2011
Last updated March 11, 2011


Migraine Triggers and Holidays: December Migraine Blog Carnival

BlogCarnival125 Welcome to the Dec., 2010, Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the December carnival is "How can we make the holidays special despite the need to limit our migraine triggers?"  This month's carnival is hosted by Diana Lee, the founder of the carnival, on her blog Somebody Heal Me.

Are you ready to read some great posts? On to  Holidays & Triggers: Dec. 2010 Headache & Migraine Blog Carnival.

For the Migraine bloggers among you, here's the information for the January blog carnival:
Theme: Taking Charge of Our Migraines in 2011.
Deadline: Friday, January 7, 2011
Post Date: Monday, January 10, 2011
Host: I'll be hosting this carnival here!

Live well,


 

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© Teri Robert, 2010
Last updated December 13, 2010.


November 2010 Migraine and Headache Blog Carnival: Thankfulness

BlogCarnival125 Welcome to the Nov., 2010, Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the November carnival is "What are you thankful for despite living with Migraine disease?"  This month's carnival is hosted by Diana Lee, the founder of the carnival, on her blog Somebody Heal Me.

Are you ready to read some great posts? On to the November, 2010. Headache & Migraine Disease Blog Carnival: Thankfulness.

TGivingBoyPraying

Live well,


 

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© Teri Robert, 2010
Last updated November 8, 2010.


Back to School: Sept. 2010 Migraine Blog Carnival

BlogCarnival125 Welcome to the Sept., 2010, Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the September carnival is "Students and headache disorders - How have migraines & headaches affected your schooling? How has a headache disorder affected your school age child? How did you cope with balancing school and headaches or migraines?"

This month's carnival is hosted by Diana Lee, the founder of the carnival, on her blog Somebody Heal Me.

Are you ready to read some great posts? On to the September, 2010. Headache & Migraine Disease Blog Carnival: Back to School.

Live well,


 

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© Teri Robert, 2010
Last updated September 13, 2010


Migraine Blogging and the Versatile Blogger Award

VersatileBlogger200x200 It's always nice to know that someone enjoys my blogging about Migraines and headaches. It's especially nice when that someone is a fellow Migraineur and Migraine blogger. So, it was especially touching to receive the Versatile Blogger Award from Migraine Puppet.

There are some "rules" to accepting this award, so here we go...

Rule #1: Thank the person who gave you your award.
With pleasure! Thank you, Migraine Puppet! for passing the Versatile Blogger Award on to me. I've been reading your blog since you started it, and it's wonderful. You choose topics that are near and dear to Migraineurs, and you write so conversationally that it's a true pleasure to read your blog.

Rule #2: Share seven things about yourself:

  1. I have nine grandchildren and two great-nieces. 
  2. The first Migraine I remember occurred when I was six-years-old.
  3. Three of our grandchildren have Migraines.
  4. I believe that optimal health care can be achieved only when patients are educated about their health and patients and physicians work together as treatment partners in an atmosphere of mutual respect.
  5. I also believe that that person with the most at stake gets to be in charge. When that comes to our health, that's us, not our doctors. So, we need to take charge of our health.
  6. A day with no internet access will drive me up a wall.
  7. My favorite color is red.

Rule #3: Pass the award on to 15 bloggers whom you have recently discovered and who you think are fantastic!

  1. Against the 'Graine
  2. A ClusterHead's Life
  3. A Chronic Dose
  4. The Daily Headache
  5. Doctor Grumpy in the House
  6. Every Patient's Advocate
  7. Free My Brain
  8. Headache News Blog
  9. Jasmine's Cove
  10. The Migraine Girl
  11. Mom Migraine
  12. Somebody Heal Me

Well, that's only 12 blogs, but some of my favorite bloggers haven't updated their blogs for a long time. Hopefully, that means their Migraines are better controlled, and they're out having fun.

Rule #4: Contact the bloggers you picked and let them know about the award. Will do!

Live well,


 

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© Teri Robert, 2010
Last updated July 29, 2010