Sunday Thoughts on Living with Migraine: After Awareness Month

TulipThoughtsGood afternoon, and happy Sunday to my extended Migraine and Headache Family!

Migraine and Headache Awareness Month (MHAM) was in June, but the need to raise awareness never ends. Lack of awareness in the general public results in:

  • the perpetuation of myths and misconceptions about Migraine, Cluster Headaches, and other Headache disorders
  • the continuation of the social stigma associated with Headache disorders
  • discomfort and reduced quality of life for people who have Headache disorders

Advocacy-All-Year-300So it's important that we strive to raise awareness all the time, not just during Migraine and Headache Awareness Month.

Since you're reading this, it's a given that you spend some time online. Social media outlets such as Facebook and Twitter are magnificent ways to share information and raise awareness! They're easy to use, and quite a bit can be accomplished with minimal effort. That makes them great tools for those of us whose time and energy are limited by chronic Headache disorders.

One easy way to keep track of awareness and advocacy opportunities is to keep an eye on my Facebook page. I'm constantly posting links to educational articles about Migraine and other Headache disorders, Migraine and Headache treatments, and events such as Headache on the Hill and Migraine and Headache Awareness Month. Simply sharing these links on your Facebook page is a quick and simple way to help raise awareness.

If you're looking for the most recent information about Migraine and other Headache disorders and their treatments as well as support and advocacy and awareness info, check out our HealthCentral Migraine Management group on Facebook.

A don't-miss source of information and support is the American Migraine Foundation's Move Against Migraine campaign. You can check it out on the American Migraine Foundation web site or through the widget below.

There are many ways to raise awareness year-round. I've barely scratched the surface here. If you have ways to raise awareness that you'd like to share, please leave a comment, and tell us about them. 

Live well,

 because a migraine is NOT "just a headache"
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A Day to Fund Migraine and Headache Research - Join Us!

R4R-M4ROn Saturday, October 8, we have several opportunities to help raise funds for Migraine and Headache research:

Runnin' for Research will be holding 5-K runs and 1-mile walk walks in three locations:

  1. Morgantown, West Virginia;
  2. Parkville, Missouri (just outside Kansas City); and
  3. Jeffersontown, Kentucky (just outside Louisville).

There is also a virtual runner option for all three of the Runnin' for Research events for those who can't be there in person to participate. To register to walk or run, in person or virtually, visit the Runnin' for Research upcoming races page.

Also on October 8, Miles for Migraine has a 5-K run, 10-K run, and 2-mile walk in Philadelphia. To register for the Miles for Migraine event, visit their registration page.

About Runnin' for Research and Miles for Migraine:

Runnin' for Research works with patients, doctors, and institutions to hold run and walk events to raise funding for research for Migraine, Cluster Headaches, and other headache disorders and to raise awareness of these disorders. Events can be held in cities and towns of varying sizes.

Miles for Migraine holds events in large cities that have teaching hospitals with fellowships in "headache medicine." Funds raised by these races are used to support research and the education of headache and Migraine experts in these cities.

Please Join Us:

For more information, or to register, visit:

Runnin' for Research

Miles for Migraine

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

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For My Beautiful Migraine and Headache Family

Beautiful275Problem Migraines and Headaches can really bring us down, not only physically, but emotionally as well. They can sap our strength, our self-confidence, sense of self-worth, and our hope. These are issues we need to work on, and one very important reason we need to work on them is that our self-perception so strongly affects how other people perceive us.

Every human being is indeed beautiful, but Headaches and Migraines can make it harder for us to remember that and claim it for ourselves. Sometimes, we can use some help in this area. So, today, I want to share a video with you. In this video, Carole King performs a song that I fell in love with years ago.

Please view this video and listen to the song knowing that I care for you, and I know that you ARE INDEED beautiful. I listen to this song to start out each day. Maybe you'll want to bookmark this page so you can come back to it when you need a reminder that you're beautiful.

Live well,

PurpleRibbonTiny Teri1
 

Make a difference... Donate to the 36 Million Migraine Campaign!

 

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© Teri Robert, 2014
Last updated September 27, 2014.


Ask Migraine Specialist Dr. Rob Cowan a Question

QuestionDr. Rob Cowan, a magnificent Migraine and headache specialist and director of the Stanford Headache Center is accepting questions about headache disorders through 5 p.m., Pacific time, tomorrow (Friday, March 8).

Selected questions will be answered on the Stanford Medical blog Scope.

Dr. Cowan is a perfect person to answer Migraine and headache questions. He's a wonderful specialist, has Migraines himself, is a published author on the topic, and is active in advocacy efforts on behalf of patients with Migraine and other headache disorders.

To ask Dr. Cowan a question, Tweet it with the hashtag #AskSUMed or post it in the comments section of this Scope blog entry - Ask Stanford Med: Director of Stanford Headache Clinic taking questions on headache disorders.

Live well,

PurpleRibbonTiny Teri1
 

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© Teri Robert, 2013
Last updated March 7, 2013.


Migraine Advocacy, Leadership, and Nonsense

MimeSteepledFingersSome of you who follow me on Twitter (@TRobert) have been asking what's going on with a certain person who has been attacking my integrity as a Migraine patient educator and advocate. I'm not going to give him the attention he seeks by mentioning his name. I'll just refer to him by an appropriate movie reference, "he-who-must-not-be-named."

His motivation is a mystery to me, partly because he contradicts himself often, and partly because he often just makes no sense. He has said that I'm biased because I take money from "big pharma," which isn't accurate. I explained that a while back for you, my readers, not for him, in Migraines, Advocacy, and Big Pharma. Now, he's calling that blog entry "inaccurate" because I said I'm paid for blogging for Migraine.com, and that they provide the site to users at no charge by selling advertising space on the site. Now he's yammering that there are no "big pharma" ads on the site. Maybe you can see my confusion here? First he gripes about there being advertising; then he's giving me 24 hours to prove there are ads on the site or his company will "issue a press" on me. As it turns out, the reason he can't see the ads is that they're only visible to people viewing the site from the U.S. Regardless, there's simply no sense in the aggressiveness or attacks, especially when I've been quite open and transparent about all of my relationships with any company.

That's just a bit of what's been going on with being maligned by "he-who-must-not-be-named." If he lived in the United States, I could consider suing him for libel, defamation, and other things, but he doesn't live in the U.S. I suspect that's part of why he feels he can say the things he does with impunity. Of course, he has tweeted that he enjoys arguing. Go figure!

Twitter will do nothing about him and his Tweets. It's their policy that "differences" between users be sorted out between them. Since he hasn't physically threatened me, they don't even consider what he's doing to be harassment.

In any case, this makes me think of something my college president said, "You know you're being an effective leader when half the people are following you, and half the people are chasing you." Looking at it that way, maybe it's a badge of honor to be attacked by this person. I'm in good company at least. He also claims that some of the best and brightest doctors and researchers in the Migraine field are wrong in their thinking about Migraine disease, claiming that their research is flawed and biased. Yeah, right.

Usually, I'm happy to discuss different theories with people, entertaining the thought that their theories can have merit even though they fly in the face of the current conventional wisdom. In the case of "he-who-must-not-be-named," his approach has resulted in my not wanting to hear anything he says about the theories he supports because he's so certain that only his theories are correct and the fact that he attacks and vilifies anyone who disagrees. 

In the end, he's nothing more than a bully who seems to need to attack other people to prove his worth. I've been responding to him because I want patients to have access to good information and not fall for his rhetoric. I'm through with that. You are more intelligent than to fall for it. In the 13 years I've been working to bring you information and offer you support, I've never misled you, and I never will.  Responding to "he-who-must-not-be-named" accomplishes nothing, reinforces his bad behavior, and - most importantly - takes time that I could spend writing for or supporting people with Migraine and other headache disorders. He'll have to be content with talking to himself because I'm not playing his game any longer.

Live well,

PurpleRibbonTiny
 

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© Teri Robert, 2013
Last updated February 12, 2013.

 


Migraine Awareness Month 7: List Topper

AwarenessMonth2012BC2Hi there! It's day seven of National Migraine Awareness Month, and today's challeng for our blog challenge is:

Migraine Awareness Month #7: List Topper.
There are lots of myths and misconceptions about Migraine. Which one tops your list as the biggest and most common? What can we do to get the truth out there?

Today, I wrote my challenge blog for ACHE, so you can read what I wrote there, in Migraine Awareness Month 7: List Topper.

As an extra, just in time for this particular challenge prompt, I have a new piece that just went up on Migraine.com, Top 10 Myths About Migraine.

Live well,

Teri1

Puz-only-btnGet the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

 

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© Teri Robert, 2012
Last updated June 7, 2012.


Migraine Awareness Month 6: Name That Tune!

AwarenessMonth2012BC2Whooohooo! It's day 6 of National Migraine Awareness Month, and today's blog challenge prompt is:

Migraine Awareness Month 6: Name That Tune!
Choose a theme song for Migraine disease or your headache disorder. See if you can find a YouTube video of it for your blog post.

This one is one of my favorites. I wrote and posted this one on Migraine.com, so rather than doing it twice, please allow me to send you there to Migraine Awareness Month #6: Name That Tune!

National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger’s Challenge is initiated by www.FightingHeadacheDisorders.com.

Live well,

Teri1

Puz-only-btnGet the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

 

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© Teri Robert, 2012
Last updated June 6, 2012.


Migraine Awareness Month #4 "June Is Bustin' Out All Over!"

AwarenessMonth2012BC2Good morning, and happy Migraine Awareness Month!

The prompt for today, day 4 of National Migraine Awareness Month is:

Migraine Awareness Month #4: "June Is Bustin' Out All Over!"
What's the best tip you can offer others for having some summer fun despite Migraines?

My tip is really a two-parter: Be aware of heat and the sun, and stay well hydrated.

High temperatures and getting overheated can be a very strong Migraine trigger as can dehydration, and the two of them can go hand-in-hand. Obviously, being in the hot sun can be problematic, but high temperatures can cause problems even when we stay in the shade, especially when the humidity is high. So use light colored and lightweight clothing to protect yourself from the sun, including hats, but don't stay out too long in high temperatures. And, don't forget to protect your eyes.

Dehydration, even mild dehydration, can actually be dangerous in addition to being a Migraine trigger. Be sure to stay well hydrated at all times. You can find more information on this in An Avoidable Migraine Trigger - Dehydration.

Be safe, be comfortable, avoid as many Migraines as possible, and have fun!

National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger’s Challenge is initiated by www.FightingHeadacheDisorders.com.

Live well,

PurpleRibbonTiny
 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2012
Last updated April 23, 2012.