Learning about migraine improves self-esteem | Brain Storm

Worth-a-lookI love to read articles and blog posts about Migraine. There are a lot of interesting pieces of content out there. This one, written by Tammy Rome, is one I want to share with you. It looks at learning about Migraine from a different and fascinating point of view. Enjoy!

Headache experts tell us that a wave of electrical activity called cortical spreading depression occurs long before we recognize the signs of an impending migraine attack. It starts in the brainstem and spreads everywhere. The brainstem is responsible for many autonomic reflexes that are disturbed during migraine, such as balance and coordination. This process also affects speech, vision, and hearing centers of the brain. Several neurotransmitters are adversely affected, too. Serotonin, in particular, takes a nose-dive. Understanding this helps me recognize all the symptoms of migraine, not just the headache.
Before I learned this,  I would blame the attack on my bad mood instead of recognizing the mood changes as part of the constellation of migraine symptoms. I would question whether all the strange symptoms were just a figment of my imagination or a sign that I truly was a hypochondriac. Now that I know migraine is a neurological disorder, the weird symptoms make sense. There are biological reasons for all of it. This knowledge is a good thing. By recognizing the symptoms I no longer question my sanity or blame myself for non-existent character flaws that are really just symptoms of the disease...

Read the full post, Learning about migraine improves self-esteem.

via brainstorm.tammyrome.com

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PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

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Migraine Medication Detox, Week Two: Transition Period - The Daily Headache

Worth-a-lookMedication overuse headache (MOH) is very real and can be an enormous problem for people with Migraine. MOH can occur when we use acute medications - those taken to treat a Migraine attack when it occurs - too frequently. Please note that I'm not saying abuse or misuse, but overuse. It's not a criticism of patients at all, nor is it blaming patients. Kerrie Smyres is sharing her experience with "detoxing" on her blog, The Daily Headache. These are great posts and well worth a look!

 

“This too shall pass.” Those words provide immense comfort when my migraine attacks are severe and disabling. They have carried me through many difficult years. As encouraging as this phrase can be, there’s a flipside to it: the difficult, trying times in life pass, but so do the pleasurable ones we never want to end. “This too shall pass” means that everything passes.
When I had migraine attacks last Sunday and Monday after having a remarkable few days, I was too busy panicking to remind myself that they would pass. My mind churned on my most fear-filled thoughts: What if my new treatment isn’t working? What if it’s making me feel worse? What if I will never again feel as good as I did these last few days?

via www.thedailyheadache.com

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

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January Headache and Migraine Blog Carnival - Submit Now

BlogCarnivalAware You're invited - to submit a blog entry for the January, 2013, Headache and Migraine Blog Carnival.

A blog carnival is a collection of links to a variety of blogs on a central topic. The Headache & Migraine Disease Blog Carnival has been created to provide both headache patients and people who blog about headaches with unique opportunities to share ideas on topics of particular interest and importance to us.

January's theme is New Year, New Chance to Adjust Your Migraine Treatment Strategies. The submission deadline is Friday, January 11, 2013. The carnival will be published on the Headache Disorders Blog Network on Monday, January 14.

Please email the link to your submission at terirobert@gmail.com by Friday, January 11 and include the following information:

  1. Your name as you would like it to appear in the carnival.
  2. The title of the blog post you're submitting.
  3. The url of the blog post you're submitting.
  4. The title of your blog.
  5. The url of your blog.

Do you have any questions? Please post a comment with any questions you may have.

Live well,

PurpleRibbonTiny
 

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© Teri Robert, 2012
Last updated December 29, 2012.


April 2012 Migraine and Headache Blog Carnival

MigraineBlogCarnival150 Welcome to the
February, 2012
Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the January carnival is "How do you build and maintain hope when your life is dominated by Migraine disease or another headache disorder?," and it's hosted by Diana on Somebody Heal Me.

Check out this month's great collection of blogs in Building & Maintaining Hope: April Headache & Migraine Blog Carnival.

Live well,

PurpleRibbon50
 

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© Teri Robert, 2012
Last updated April 9, 2012.


New Migraine and Headache Blog Network

BlogNetworkBadge

Blogs about Migraines and headaches have been multiplying like bunnies recently. Have you noticed?

If you do a search for Migraine or headache blogs, the results are overwhelming. What's more, you can waste a lot of time going to blogs that are nothing more than advertisements. Don't you hate that?

I love reading good blogs. I learn from them, and they make me feel less alone and isolated with my Migraines and headaches. They remind me that I'm part of a huge online community. There's solace in that.

This week, I started a new web site, the Headache Disorders Blog Network. The purposed of the site is to compile a directory of good blogs on Migraine and other headache disorders - blogs by patients, advocates, health care professionals, and nonprofit organizations. To be listed, blogs need to:

  • be accurate in any information posted on them.
  • be updated fairly regularly.
  • contain information related to one or more headache disorders.
  • be free of commercial bias.

Blogs will not be listed if:

  • the information is incorrect or outdated.
  • content has been plagiarized.
  • the content comes from "free article" sites.
  • the sole or primary purpose is to promote goods or services.
  • they contain claims of a "cure."

Since Twitter is considered to be "micro-blogging," there will also be a section for listing Twitter ID's of those Tweeting about headache disorders.

The Headache Disorder Blog Networ will be an ongoing project with blogs being added on a regular basis. Please bookmark it so you can refer to it often. If you have a blog that you'd like to submit for inclusion or know of one you'd like to suggest, please email your submission.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2012
Last updated January 25, 2012.


Migraine Pearls or Onions, 12/18/11

PearlsOrOnions125 There's a great deal of information about Migraine online, but not all of it is accurate and unbiased. It can be bright, polished, and valuable, or it can be... well, rough and stinky.

This feature, "Migraine Pearls or Onions?," highlights both the Migraine Pearls I come across online and the stinky Migraine Onions.

Today, I'm going to start with the Migraine Onion, saving the best, the Pearl, for last...

Onion100 Today's Migraine Onion goes to the blog Articles about Morf Racing for their entry Migraine Cure - Finally, a Recent Presription drug Offers Promise. Articles About Morf Racing? Seriously? I'm not even sure what morf facing is, so I did a search. On one site, I found it described thusly:

"MORF racing is an off-road triathlon team based out of Boulder, Colorado... We  mainly race off-road triathlons, including Xterra races, but we also race Cyclocross, Mountain Bikes, showshoe races, road tris, trail runs, and anything else that sounds like fun."

So, I guess it should come as no surprise that this blog entry about a "Migraine Cure" is inaccurate AND based on old information. They're writing about Telcagepant, and say...

"It is noted that this medication should help or simply render migraine cure for countless people suffering from critical migraine disorders."

No, Telcagepant was not being developed as a Migraine "cure." Migraine is a genetic neurological disease for which, at this time there are no cures on the market OR in development. Telcagepant was originally in clinical trials as a Migraine abortive medication. There was some research into it as a preventive medication as well.

The blog also says...

"However, if approved, Telkagepant will end up being the first medicine for migraine that could cure migraine simply by blocking the receptors of peptides encoded by the calcitonin gene (CGRP)... Even further study is actually desired to verify whether it is risk-free to use telcagepant on people with cardiovascular malady. Other research is also neccessary to consider the long-term efficiency and safety of this particular migraine cure. Let’s cross our fingers and hope that the true migraine cure has finally appeared."

Let me make it clear that this blog was posted on December 15, 2011 to back up my point about it being based on outdated information. Yes, Merck had conducted many clinical trials of Telcagepant, and they had gone so far as to apply to the FDA for approval of Telcagepant for the treatment of Migraine. BUT on July 29, 2011, nearly five months ago, they withdrew their FDA application and permanently discontinued development of Telcagepant. Even though the person who wrote the blog entry had included clinical trial data, he or she obviously didn't complete their research before writing.

I suggest that whoever writes for Articles About Morf Racing stick to topics within their area of expertise. I've asked this before, but I'll ask it again - Why do people insist on writing on topics outside their area of expertise, areas that already have expert writers providing quality information online?

And, todPearl100ay's Migraine Pearl. Today's Pearl goes to Migraineur and blogger Kerrie Smyres of The Daily Headache and Migraine.com.

Kerrie has been living with Migraines since she was 11-years-old and started blogging on The Daily Headache in 2005. Kerrie has really been through the wringer with her chronic Migraines and headaches. For some time, she was even unable to blog because doing anything on the computer made her Migraines worse.

It's truly great to see Kerrie blogging again. She's insightful, witty, and always well informed. Welcome back, Kerrie!

If you'd like to make a suggestion for a
Migraine Pearl or a Migraine Onion,
please leave me a comment!

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated December 18, 2011


Reducing Holiday Migraine Triggers - December Blog Carnival

BlogCarnival125 Welcome to the December, 2011
Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the Decembercarnival is "Reducing Holiday-Related Migraine Triggers: Share your best advice, tips & tricks for minimizing triggers while still fully enjoying the holiday season," and it's hosted by Kelly on Fly With Hope.

Check out this month's great collection of blogs in December 2011 Headache & Migraine Blog Carnival.

Live well,


 

Puz-only-btn


Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

Follow me on    or 

 

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© Teri Robert, 2011
Last updated December 12, 2011.


One of My Favorite Migraine Posts

NhbpmLogo150One of my favorite Migraine posts was the one below from January, 2011. It's one of my favortites because I so strongly believe in this statement from it:

The person with the most at stake gets to be in charge.

It's also one of my favorites because it's never too late to take charge of our Migraines or other health issues and work with our doctors toward better health and quality of life.

 

2011TakingCharge Migraines often seem to control our lives, and that's simply not acceptable. Although there's no cure for Migraine disease at this time, there has been progress in research, and there are quite effective treatments.

This year, let's rededicate ourselves to taking charge of our Migraines! The first thing we have to do is realize this:

The person with the most at stake gets to be in charge.

When it comes to our health, WE are the person with the most at stake. Our doctors play an important role, but we have more at stake. We must work with our doctors as treatment partners, with our doctors making decisions WITH us, not FOR us. Does your doctor work with you this way? Are you making progress with managing your Migraines? If not, it may be time for a new doctor. For more about this, see Is It Time for a New Migraine Doctor?

Let's also take a look at some lifestyle and other health issues that can impact our Migraines:

  • Sleep. How's your sleep? Too much sleep, too little sleep, disrupted sleep, poor quality sleep, and irregular sleeping schedules can all be Migraine triggers. It's recommended that Migraineurs get up and go to bed at the same time every day, including weekends and holidays. If you're waking with Migraines, it's often a sign that a sleep issue is the trigger. If you've never discussed sleep with your doctor, now's a good time to make a note to do so at your next appointment. Here's a short video on this topic - Migraines, Headaches, and Sleep.
  • Nutrition and hydration. How are you doing with your eating patterns? Eating healthy meals on a regular schedule is important. It's also important to know if you have any food triggers. Some of us do, some don't. If you don't know, you can read about figuring it out and download a free workbook from this article - Managing Migraine - Migraine Trigger Foods. Dehydration can be a strong Migraine trigger. For some of us, even being a little bit dehydrated is a problem. Read up on this in An Avoidable Migraine Trigger - Dehydration.
  • Overall Health. When we're healthy, we're less vulnerable to our Migraine triggers. Do you see your "regular" doctor for a check up on a regular basis? If not, this is a good time to make an appointment and promise yourself that you're going to take better care of yourself. When you see your doctor, please ask him or her about what risk factors for stroke and other cardiovascular events and diseases you can reduce with lifestyle. These are called modifiable risk factors, and since Migraine puts us at increased risk of stoke and other cardiovascular events and diseases, it's important that we have this discussion with our doctors.

The importance of a strong support system is often overlooked, but it shouldn't be. It's vital that we have a good support system. That support system often gives us the strength to keep fighting. I know how damaging Migraines can be to our relationships. Part of taking charge of our Migraines is taking a good look at our support system, working to maintain relationships, forming new relationships, and possibly having to accept the weakening or even loss of some relationships. The damage Migraines can inflict upon friendships is something I understand from experience. For some help with this, please take a look at When Migraines Endanger Our Friendships.

Each of our situations is different. We have things in common, and ways in which we're different when it comes to Migraine management. Our needs are different, and our approaches will be different. I hope I've given you a start here. What are you going to do to take charge of your Migraines in 2011?

 

HAWMCBannerThis post was written as part of NHBPM – 30 health posts in 30 days: http://bit.ly/vU0g9J

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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Page copy protected against web site content infringement by Copyscape

© Teri Robert, 2011
Last updated November 19, 2011