National Migraine and Headache Awareness Month Begins Tomorrow

2018-MHAM-Collab-200June is National Migraine and Headache Awareness Month, and there are a number of easy ways in which everyone can participate. Below are just two of the ways you can participate this year. 

Break the Silence

Help the National Headache Foundation break the silence for the millions who suffer from Migraine and Headache by sharing your story! June is Migraine and Headache Awareness Month, and this year, the NHF is collecting stories from around the world at the newly launched headachestory.com.

Anyone can submit a story through headachestory.com, either through words or video. The goal is to empower Migraine and Headache sufferers by showing them that they are not alone. Not only that, increasing awareness of the disease will lead to further research and treatments.

Join the Social Media Challenge

2018-MHAM-SMC-200MigraineDisease.com is kicking off National Migraine and Headache Awareness Month with the 2018 #MHAM Social Media Challenge. This year’s theme is “You Are #NotAlone – Partnering for Better Migraine and Headache Care.” 

As in previous years, there are plenty of opportunities to spread awareness through blogging, tweeting, or posting on just about any social media platform. Each morning, we’ll post a new challenge on MigraineDisease.com. We’ve streamlined the process to make it easier for everyone.

There are three ways to participate:

  1. Quick and Easy
    Click on the icon for your favorite social media platform to share each day’s post.  A window will pop up, giving you the opportunity to add your own unique comments before posting to your choice of platforms.
  2. A Little Effort
    Write a brief response to the day’s challenge in the comments section at the end of our daily posts. Take minute to tell us what excites you the most about the 2018 #MHAM Social Media Challenge. Just enter your comments below.
  3. A True Challenge
    The more ambitious in our community may choose to write a blog post in response to the Challenge. When it’s published, don’t forget to share the link as a comment to that day’s challenges so we can promote you, too.

It’s all up to you. Participate as much as you want, on as many days as you are able. There’s no penalty for skipping days. Self-care comes FIRST, especially during the 2018 #MHAM Social Media Challenge. If you'd like to receive an email with each day's challenge, you can register for that HERE.

These are just two of the activities for National Migraine and Headache Awareness Month. I hope you'll participate as much as you're able to. We can all stand to be reminded that You Are Not Alone!

Live well,

 because a migraine is NOT "just a headache"
Visit MigraineDisease.com

 

MigraineNinja200

 drawing on our inner Ninja to live a full life
Visit Migraine.Ninja


New Migraine Education and Support Site Coming May 1

Post_image250Over the years, I've worked on several sites and blogs about Migraine disease, among them, MigraineDisease.com. Mostly due to lack of time, MigraineDisease.com has never been as good as it could be. Well! That's changing!

On May 1st, 2018, an all new MigraineDisease.com will be launched. I've teamed up with Migraine and headache patient educator and advocate Tammy Rome and her husband Brian to build the ultimate site for education, support, and advocacy/awareness. Here are some things to know about our new site:

  • All of the content on the site will be original content, not content copied from other sites and writers.
  • Every piece of content is reviewed by a UCNS certified Migraine and headache specialist for accuracy.
  • Our experienced patient educators have a total of 300+ continuing education hours in "headache medicine."
  • We have a medical advisory board consisting of practicing physicians and psychologists who specialize in treating patients with Migraine and other headache disorders.
  • We're Migraine and headache patients too. We know what it's like to live with these diseases/disorders.

For 18 years, I've written Migraine and headache content for About.com and the HealthCentral Network. Don't get me wrong — they've been good years, and I continue to write part-time for HealthCentral. But, it's also a dream come true to write for a site where my partners and I will set the editorial direction for the site and make our own decisions about editorial and other issues. 

I've had Migraines since I was six-years-old. Have gone back and forth between episodic and chronic Migraine, with times during which I had a Migraine every day. Tammy has both chronic Migraine and Cluster Headaches. We both feel incredibly fortunate to be able to attend the same continuing education conferences that Migraine and headache specialists attend, to have built a network of colleagues we can call upon for information and explanations, AND to be able to write content that allows other patients to better understand their Migraines and/or headaches and be better prepared to work as treatment partners with your doctors. We'll also be continuing to develop ways to offer you the support you need to retain hope and live better. Finally, MigraineDisease.com will always provide you with awareness and advocacy information so you can participate in those efforts — in simple, quick ways and in more in-depth ways, depending on your circumstances and wishes.

We're working hard to be ready to launch our new site on May 1st. For now, please visit MigraineDisease.com, and sign up for email updates and announcements.

Live well,

 because a migraine is NOT "just a headache"
Visit MigraineDisease.com

 

MigraineNinja200

 drawing on our inner Ninja to live a full life
Visit Migraine.Ninja


Sunday Thoughts on Living with Migraine: After Awareness Month

TulipThoughtsGood afternoon, and happy Sunday to my extended Migraine and Headache Family!

Migraine and Headache Awareness Month (MHAM) was in June, but the need to raise awareness never ends. Lack of awareness in the general public results in:

  • the perpetuation of myths and misconceptions about Migraine, Cluster Headaches, and other Headache disorders
  • the continuation of the social stigma associated with Headache disorders
  • discomfort and reduced quality of life for people who have Headache disorders

Advocacy-All-Year-300So it's important that we strive to raise awareness all the time, not just during Migraine and Headache Awareness Month.

Since you're reading this, it's a given that you spend some time online. Social media outlets such as Facebook and Twitter are magnificent ways to share information and raise awareness! They're easy to use, and quite a bit can be accomplished with minimal effort. That makes them great tools for those of us whose time and energy are limited by chronic Headache disorders.

One easy way to keep track of awareness and advocacy opportunities is to keep an eye on my Facebook page. I'm constantly posting links to educational articles about Migraine and other Headache disorders, Migraine and Headache treatments, and events such as Headache on the Hill and Migraine and Headache Awareness Month. Simply sharing these links on your Facebook page is a quick and simple way to help raise awareness.

If you're looking for the most recent information about Migraine and other Headache disorders and their treatments as well as support and advocacy and awareness info, check out our HealthCentral Migraine Management group on Facebook.

A don't-miss source of information and support is the American Migraine Foundation's Move Against Migraine campaign. You can check it out on the American Migraine Foundation web site or through the widget below.

There are many ways to raise awareness year-round. I've barely scratched the surface here. If you have ways to raise awareness that you'd like to share, please leave a comment, and tell us about them. 

Live well,

 because a migraine is NOT "just a headache"
Visit MigraineDisease.com

 

MigraineNinja200

 drawing on our inner Ninja to live a full life
Visit Migraine.Ninja


Sunday Thoughts on Living with Migraine: I Need Your Advice

SundayThoughtsGood afternoon, and happy Sunday to my extended Migraine and Headache family!

June will soon be upon us, and it's Migraine and Headache Awareness Month. As I've been making plans for Awareness Month, I've been thinking about what we did in previous years, and find myself a bit stumped. So, today, I'm turning to you for some advice.

Every year, several organizations and individual advocates devise Awareness Month activities hoping to engage as many Migraine and Headache patients as possible. The purpose of these activities is to raise awareness of Headache disorders in the general public and reduce the social stigma associated with them. These activities include:

  • printing an awareness sign, taking a picture of yourself with it, and posting it to social media
  • the sale of awareness month shirts and other items
  • daily prompts for writing blogs and posting to social media outlets such as Facebook and Twitter.

The problem is the low rate of participation in these activities, and this is where I turn to you for advice. Would you pretty please, with a cherry on top, either post a comment below or use the email button in the right column of this blog to share your thoughts with me? I'd love to hear your thoughts on why Awareness Month participation is low. Do we need different or additional activities? If so, what might they be? Do you have ideas about why participation is low?

I'd be remiss if I didn't take this opportunity to thank everyone who has participated in Awareness Month activities in previous years, so thank you! Together, maybe we can find ways to get more people involved this year and in the future.

Live well,

 because a migraine is NOT "just a headache"
Visit MigraineDisease.com

MigraineNinja200

 drawing on our inner Ninja to live a full life
Visit Migraine.Ninja

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2017.


Raising Migraine and Headache Awareness All Year - MHAY

Advocacy-All-Year-300Yesterday was the last day of Migraine and Headache Awareness Month (MHAM). It's been a wonderful month full of learning, sharing, and raising awareness about the Headache disorders that disrupt so many lives.

The only bad thing about MHAM is that once it's over, we tend to let up on the learning, sharing, and awareness until MHAM rolls around next year. Many of us take an 11-month break. The problem with that is that our Migraines and Headaches do NOT take a break. We don't get an 11-month break from the pain and other symptoms. Nor do we get a break from the varying levels of disability these disorders cause OR the social stigma associated with them.

It may sound a bit odd, but I propose that every YEAR be Migraine and Headache Awareness Year (MHAY). We can use Awareness Month as a time of coming together, getting new information — new ammunition, if you will, sharing awareness ideas, and charging our batteries for MHAY.

MHAY might sound like a lot of work, but it really isn't. When done on a regular basis, raising awareness becomes automatic. If you stop and think about it for a minute, you may find that you're already doing it to some extent. Here are some things that can be done easily and quickly to help raise awareness:

  • When you see good Migraine and Headache information online, share it. This can be accomplished with Facebook, Twitter, or by emailing a link.
  • Incorporate more purple in your wardrobe. People will notice, and when they do, you can explain that it's our awareness color.
  • Don't hide your Migraines or Headaches. They're true biological diseases and disorders, and they're nothing to be ashamed of. Stigma has caused some of us to try to hide them, but that only perpetuates the stigma.

Increased public awareness can make live better and easier for all of us, but if we sit back and leave raising awareness to others, progress will be very slow and limited.

I hope you'll join me in celebrating Migraine and Headache Awareness Year — this year and every year!

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 

Save

Save

Save

Save


Under the Hat for Migraine and Headache Awareness

Under-the-Hat-AHMAAs a part of Migraine and Headache Awareness Month, the American Headache and Migraine Association (AHMA) is participating in the European Headache Alliance's "What's Under the Hat?" initiative to raise public awareness of Headache Disorders. AHMA has selected today - Saturday, June 25th - to be our "Under the Hat" day.

Do you live with a headache disorder? Share your story!

Share your story, along with a photo of yourself wearing a hat, to Facebook or Twitter OR create a video story and post it to YouTube, including the hashtags ‪#‎underthehat‬ ‪#‎MHAM‬ and Twitter handle @AHMAOrg

You can find helpful tips on participating here: http://www.europeanheadachealliance.org/under-the-hat/

Please include the logo shown here.

Spread the word to your friends and family so they can join in the fun!

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.


Migraine Can and Does Kill Through Stroke and Suicide

MHAM16SMC350Today is day #5 of the 2016 Migraine and Headache Awareness Month Social Media Challenge. Today's prompt is:

#Migraine can and does kill through stroke and suicide. #MHAM

It's one of the things about Migraine that nobody wants to talk about. Migraine can kill. No, you'll probably never see it listed as a cause of death, but Migraine can and does kill. This is one reason I truly detest seeing someone say, "This Migraine is killing me." Whenever I see someone Tweet that or say it elsewhere online, I think to myself, "If it were, you wouldn't be at your computer or on your phone or tablet."

                         

One way Migraine can kill is by causing a stroke that proves fatal. Thankfully, this isn't very common, but it does happen. This accentuates how vitally important it is for us to contact our doctors or seek emergency care if we experience new Migraine symptoms that are frightening or especially severe. So many of the symptoms we can experience during a Migraine attack can also be stroke symptoms. My Migraine specialist, Dr. David Watson, was asked how we can tell if some of these symptoms are stroke or Migraine. His reply was that there are times when we truly can't tell by ourselves, and if there's ever a question, we should seek immediate care. Better a false alarm than a stroke that doesn't get timely treatment.

 

Sorrowfully, the pain, other debilitating symptoms, isolation, fear, and social stigma that go with Migraine disease has led far too many people to lose all hope and take their own lives. It's heart-wrenching when this happens to ANYONE, and it's especially so when it happens to younger people with so much of their lives ahead of them. I've known this to happen with Migraineurs as young as 14-years-old, and it's beyond tragic.

 

Some people contend that it's not Migraine, but stroke and suicide that takes these lives. Although they may have a technical point, it's time they wake up and get a clue. That's almost like saying that drunk divers don't kill - it's the injuries from the car wrecks that kill. Anyone with an ounce of compassion doesn't argue the point. They accept that both drunk drivers and Migraine kill.

 

As we strive to raise awareness and improve the lives of everyone with Migraine and other Headache disorders, one of the most valuable tools we have is knowledge. To us it properly, we have to admit even the painful facts to ourselves and share them with others. We have to bring facts out into the light rather than leaving them in the shadows to fester and cause harm.

 

Please Join Us In This Year's
Migraine and Headache Awareness Month Activities!

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 


Migraine and Headache Awareness Month Activities, Images, and More

NMAHM2016JoinUsDo you have Migraine, Cluster Headache, or another Headache disorder - or care about someone who does? Almost everyone knows someone with a Headache disorder. Whether one or more of these disorders impacts you directly or through people you know, I hope you'll join us this month - Migraine and Headache Awareness Month (MHAM) - in our efforts to raise awareness and improve lives.

One of the most important aspects of MHAM is getting accurate and compelling facts out in view of the general public to dispel myths and misconceptions and to reduce the social stigma associated with Cluster Headache, Migraine, Post-Traumatic Headache, and all other Headache disorders.

Many people are generating creative ways to observe MHAM, and there are some organized efforts that everyone can join.

In previous years, there's been a MHAM Blogging Challenge. It's been great. This year, to involve more people, the Blogging Challenge morphed into the Migraine and Headache Awareness Month Social Media Challenge. I provided a "prompt," which is a fact to be used for each day of the month, and a logo to go with them.

Here's how it works:

  • MHAM16SMC150To participate in the Social Media Challenge, you need to use the fact in your blog and /or on one or more other social media platform - Facebook, Twitter, Instagram, etc., using the hashtag #MHAM.
  • You don't have to manage to participate every day to accept the challenge. We know that some of us simply won't feel up to it every day, so participate as much as you can.
  • If you use an image, please use the Social Media Challenge logo (without changing it), which you can see here. I'll add it in a few different sizes at the end of this post so you can get it.

You can find all the prompts and more info in my post Migraine and Headache Awareness Month Social Media Challenge.

People are also having great fun changing their Facebook profile and cover images to Awareness Month images. I've created one of each that I'll add below. You're welcome to use them. If you do, please do not make any changes to them.

The month is off to a strong start with bloggers writing about it and people Tweeting and posting on Facebook about it. I hope you'll join us to reach more people and make it even stronger. There are images below for Facebook and for general use. If you have any problems with getting the images, or if you have any questions, please contact me through the email link at the top of the right column of this page.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

Follow me on    or 
 

Page copy protected against web site content infringement by Copyscape© Teri Robert, 2016.

 

All images ©Teri Robert, 2016. You're welcome to use them in conjunction with Migraine and Headache Awareness Month, but they must be used without any changes or additions.

Facebook profile image:
2016FBProfile

Facebook cover image:
MHAM16

 Awareness Month Logo:
   NMAHM2016B325
NMAHM2016B500
Awareness Month Social Media Challenge Logo:
MHAM16SMC250  MHAM16SMC350


NMAHM2016B500