Join Me for the 2018 Migraine World Summit Beginning April 18

MWSexperts300The World Migraine Summit begins online tomorrow. It's the biggest opportunity to learn about Migraine disease all year. The Migraine World Summit will bring together over 30 top experts, doctors and specialists to share new treatments, research and strategies for Migraine and chronic Headache.

WHY ATTEND?

  1. World-Leading Experts: At the Migraine World Summit, you’ll learn first-hand from over 30 of the world’s top migraine and headache experts, doctors, specialists, from leading institutions including the Mayo Clinic, Harvard Medical School, Cleveland Clinic, Stanford, John Hopkins Hospital, and the International Headache Society.
  2. Full Access: Many of these world-leading experts have long waiting lists and fees that are beyond the affordability of the average insurance policy. Skip the waiting period and get straight into the room with these experts.
  3. Free: The event is entirely free whilst live from April 18-26. Visiting dozens of specialists in one field would take years and costs thousands of dollars. This is an incredible opportunity to hear from dozens of leading experts in migraine for free during the week. After April 26 transcripts and interview copies are available to order.

I'm thrilled to have been asked to be part of this year's Summit. You can see my presentation, They Don’t Get It: Educating Family & Friends on Migraine, on Saturday, April 21.

It's important to get your free ticket NOW by following this link. Once you've requested and received your free ticket, you'll receive an email each day with that day's schedule. 

Information about the event including topics, schedule and speakers can be found at https://www.migraineworldsummit.com/schedule/

Summit presentations commence Wednesday, April 18 at 9.00am Eastern Standard Time (New York). To convert this time into your own time zone visit: http://www.timeanddate.com/worldclock/converter.html

From April 18-26, you will be sent a link each day to watch the speakers.

You will have 24 hours to listen to each day’s program, regardless of your time zone. After 24 hours, those interviews will be replaced by the following day's speakers. This is so that as much content as possible can be included in the Summit without exhausting bandwidth restrictions, slowing speed or having to limit volumes during the week.

If you miss some of the sessions, or if you'd like transcripts and videos of the sessions, they'll be available. For your ticket to attend free, or to check out transcripts and videos, just follow the link below.

Please join me for the
2018 Migraine World Summit!

Live well,

 because a migraine is NOT "just a headache"
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 drawing on our inner Ninja to live a full life
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Cefaly II for Migraine Prevention - Additional Info

CefalyIIYesterday, I told you about the new Cefaly II that's now available in the United States for Migraine prevention. People in the UK and Canada wondered if and when it would be available to them. So, I asked for additional information. The Cefaly II will be available in Europe (including the UK) in September. I don't have an availability date for Canada yet, but will let you know when I did.

There's also additional information for people in the U.S. who already have the Cefaly I. People with the Cefaly I can order the Cefaly II without getting a new prescription. Your original prescription will be honored for the Cefaly II. Also, you will receive two sets of three electrodes at no additional charge.

I hope the additional information is helpful. If you missed my original post about the launch of the Cefaly II, just follow this link — New Cefaly II Launched for Migraine Prevention.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

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January 2011 Migraine and Headache Blog Carnival: Taking Charge in 2011

BlogCarnival125 Welcome to the January, 2011, Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the January carnival is "Taking Charge of Our Migraines in 2011."

Are you ready to read some great posts? Here we go...

The February 2011 carnival will be on the theme of "Romantic Relationships & Migraines: How are they affected? Is is possible to build a new one? Does anything about living with a chronic condition bring you closer?" Submissions will be due on Friday, February 11, and the carnival will be posted at Somebody Heal Me on Monday, February 14. You can submit entries by sending them to this email address or by using the blogcarnival.com website.

All of us wish you the very best in 2011. May we all have fewer Migraines and more joy.

Live well,


 

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© Teri Robert, 2011.
Last updated January 10, 2011.


New Migraine Site Launched at Migraine.com

MigraineCom175w Migraine disease impacts 37 million people in the United States alone. Migraines can be debilitating, frightening, frustrating, and isolating. The Internet has opened many doors for Migraineurs. We now have more information available than ever before. Still, the need for educational information, support, and advocacy continues, and Internet sites that are accurate and unbiased continues.

Today, a new Migraine site is officially launching at Migraine.com. For a few months now, a team has been working to add content to Migraine.com, and I'm pleased to be one of the patient advocates and bloggers writing for the site. I'm impressed by the knowledge and passion of everyone involved with the site.

On Migraine.com, you can find:

  • Informative articles about Migraine disease, the types of Migraines, Migraine treatments, Migraine Triggers, and more.
  • Blogs by two great Migraine specialists, Dr. Susan Hutchinson and Dr. Dawn Marcus.
  • Blogs by patient advocates and bloggers whom you probably already know:
  • A discussion forum.
  • An "Ask the Experts" section where you can ask your Migraine related questions.
  • A Migraine Symptom Checker
  • A section of Patient Stories where you can read about other people and their Migraines.

The site has an online Migraine Journal with great new features coming for 2011.

To encourage Migraineurs to share their story, one of the first 500 people who register as a member at Migraine.com and write their Patient Story will win an Apple iPad!

One person has already asked me a question that I know more of you will ask - Does my writing on Migraine.com mean I'll stop any of the work on the other sites I write for or own? No. I will be continuing with my other work as well. We Migraineurs need all the good resources we can get!

Come check out Migraine.com soon!

Live well,


 

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© Teri Robert, 2010
Last updated December 21, 2010


FDA Has Approved Botox for Chronic Migraine

Botox100 If you have chronic Migraines, you'll be interested to learn that the FDA has approved Botox for the treatment of chronic Migraines.

Chronic Migraine is defined as Migraines 15 or more days a month, lasting at least four hours per day.

Botox has been used off-label for Migraine for quite some time. What does the FDA approval mean for patients?

Read more in Botox Approved by FDA for Chronic Migraine.

Live well,


 

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© Teri Robert, 2010
Last updated October 19, 2010


FDA Approves Botox for Migraine

Botox100

 

The FDA approved Botox for Migraine prevention on Friday, October 15. Please check back here for more details in the next few days.


Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 15, 2010.


Botox for Migraine: Sept., 2010, Update

Botox100 Clinical trials to determine the efficacy of Botox (botulinum toxin type A) for Migraine prevention have been underway for several years. During this time, some doctors have used Botox off-label for their patients. Let's take a look at where things stand now, in September of 2010.

A bit of background: Off-label prescribing or usage of medications is very common. "Off-label" simply means using a medication for a purpose other than those for which the FDA has specifically approved it. Once a medication is approved by the FDA for human use, it's both legal and legitimate for doctors to prescribe it for other conditions when they believe it will be helpful. Migraine preventive medications are a perfect example of off-label prescribing. Of the more than 100 medications in use today, none of them were originally developed for MIgraine treatment. They were all developed for other conditions, then found to work as preventives for some Migraineurs. Four of them were put through the additional clinical trials to win formal FDA approval for Migraine prevention:

  1. propranolol, a beta blocker, brand name Inderal
  2. timolol, a beta blocker, brand name Blocadren
  3. divalproex sodium, a neuronal stabilizing agent (anticonvulsant), brand name Depakote
  4. topiramate, a neuronal stabilizing agent (anticonvulsant), brand name Topamax

What's NOT permitted:

It's legal to prescribe medications off-label, BUT it's not legal for pharmaceutical companies to promote or advertise a medication for any purpose for which it's not FDA approved. That means that Allergan, the manufacturer of Botox, may promote and advertise it for the purposes for which it is already approved - cosmetic purposes, blepharospasm, cervical dystonia, hyperhidrosis, strabismus, and upper limb spasticity. Promoting it for off-label use constitutes what the FDA calls "misbranding," and it's illegal.

Recently, Allergan was in the news when they agreed to pleas guilty and pay a $600 million fine to resolve allegations that they had promoted Botox off-label.

A point that needs to be understood about this is that the issue was NOT about doctors using Botox off=label. It was entirely about allegations that Allergan had promoted it for purposes other than those for which it was FDA approved. So, it has nothing to do with the medication itself, but about marketing and promotion practices.

Good news of progress:

Botox was recently approved in the UK for treating Migraine. In the U.S., the FDA is currently reviewing clinical trial data about Botox and Allergan's application for FDA approval of Botox for Migraine treatment. Many Migraineurs are hopeful that FDA approval will come soon. I've heard from many Migraineurs who would like to have the option for trying Botox for MIgraine prevention, but their insurance companies decline payment, saying that the treatment is "experimental" or "investigational."

If you've been wondering about Botox, you might be interested in reading Allergan's information about Botox History and Development, which includes a time line of when Botox was approved for various uses.

Live well,


 

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© Teri Robert, 2010
Last updated September 13, 2010


Migraine Matters: UK Migraine Awareness Week 2010

MigraineMatters175 September 5-11 is Migraine Awarenss Week 2010 in the United Kingdom. This year, The Migraine Trust, the sponsor of the awareness week, wants to highlight that one in seven people in the UK have Migraine disease. Their focus is on why "Migraine matters" and why it should be taken serously. They note that:

"Many people think that migraine doesn’t matter because it can’t kill you, it’s not contagious and it’s mostly episodic. Migraine is all too often trivialised as “just a headache” but we know that migraine can be extremely disabling and can destroy peoples' lives."

Migraine matters because...

Migraine affects millions of people:

  • 1 in 7 people suffer from the condition, that’s over 8 million people in the UK alone (37 million in the U.S.).
  • Migraine affects 8% of men, 18% of women.
  • More people have Migraine than diabetes, epilepsy and asthma combined.

Migraine is potentially disabling:

  • The World Health Organisation has listed migraine in the 20 most disabling conditions.
  • Symptoms can include throbbing head pain, nausea, vomiting, neck pain, increased sensitivity to light and sound, temporary blindness, temporary one-sided paralysis, disturbed vision, and much more.
  • 80% of people say that their migraines cause them severe pain.

Migraine destroys lives:

  • Migraine disrupts education, employment, family and social life - everything.
  • An estimated 25 million days are lost from work or school every year because of migraine.
  • Migraines can continue for a lifetime.

The Migraine Trust needs our help with getting the word out, no matter where we live. Migraine Awareness anywhere benefits Migraineurs everywhere. The Migraine Trust has special events scheduled for Awareness Week, including:

  • The Adidas Women's 5K Challenge
  • Migraine and Headache - an information event with leading Migraine experts

For information on these events and ways we can help, please visit their Migraine Matters information page.

Migraine Action in the UK is also observing awareness week with emphasis on Migraine in the workplace. You can read more HERE.

You can also find awareness week information on the site of the Migraine Association of Ireland, HERE.

Live well,


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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated August 28, 2010.