Running, Walking, Tweeting for Migraine and Headache Research on 10/8

R4R-M4R-TwitterThis coming Saturday, October 8, is a big day for Migraine and Headache awareness and research funding. There are four important events this weekend:

  • Runnin' for Research run/walk events in West Virginia, Kentucky, and Missouri; and
  • A Miles for Migraine run/walk event in Pennsylvania.

You can find more details on these events in A Day to Fund Migraine and Headache Research - Join Us!

If you have some time on Saturday, there's an easy way everyone can help us raise awareness with these events - Tweeting and reTweeting! People at these events are going to be Tweeting, some with photos of the events, and other people reTweeting is a great way to raise awareness for Migraine and other Headache disorders as well as the two organizations.

Twitter IDs:

Hashtags:

The specific hashtags for the events are:

  • Runnin' for Research - #R4R2016
  • Miles for Migraine - #M4M2016

Sine other appropriate hashtags include:

  • #Migraine
  • #Headache
  • #ClusterHeadaches
  • #NDPH
  • #ChronicMigraine
  • #HemiplegicMigraine
  • #MHAY (Migraine and Headache Awareness Year - Encourages raising awareness all year.)

Have a great weekend! I'll see you on Twitter. 😘

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

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A Day to Fund Migraine and Headache Research - Join Us!

R4R-M4ROn Saturday, October 8, we have several opportunities to help raise funds for Migraine and Headache research:

Runnin' for Research will be holding 5-K runs and 1-mile walk walks in three locations:

  1. Morgantown, West Virginia;
  2. Parkville, Missouri (just outside Kansas City); and
  3. Jeffersontown, Kentucky (just outside Louisville).

There is also a virtual runner option for all three of the Runnin' for Research events for those who can't be there in person to participate. To register to walk or run, in person or virtually, visit the Runnin' for Research upcoming races page.

Also on October 8, Miles for Migraine has a 5-K run, 10-K run, and 2-mile walk in Philadelphia. To register for the Miles for Migraine event, visit their registration page.

About Runnin' for Research and Miles for Migraine:

Runnin' for Research works with patients, doctors, and institutions to hold run and walk events to raise funding for research for Migraine, Cluster Headaches, and other headache disorders and to raise awareness of these disorders. Events can be held in cities and towns of varying sizes.

Miles for Migraine holds events in large cities that have teaching hospitals with fellowships in "headache medicine." Funds raised by these races are used to support research and the education of headache and Migraine experts in these cities.

Please Join Us:

For more information, or to register, visit:

Runnin' for Research

Miles for Migraine

 

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

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Walk or Run for Migraine and Headache Research - In Person or Virtually

R4R-logo-250On Saturday, October 8, three Runnin' for Research runs/walks to raise funding for Migraine and Headache research will occur in:

  • Jeffersontown, Kentucky (outside Louisville);
  • Morgantown, West Virginia, and
  • Parkville, Missouri (outside Kansas City).

In each location, there will be a 5-K run and a 1-mile walk. For those who can't be present or who are physically unable to participate, there's a "virtual runner" option to support the events.

Registration for these events is kept to an affordable $20 fee. National and local sponsors have provided financial support that offsets an race expenses not covered by registration fees and adds to the "kitty" for research donations. The directors of these three events are volunteers, and they've worked diligently to organize and run fun, high quality events at minimum cost.

This is the third year for Runnin' for Research events. In 2015, Runnin' for Research donated $6,313 to the American Migraine Foundation from just one race in Morgantown. In 2016, the Louisville area race was added, and $17,434 was donated. With the addition of the Kansas City area race this year, it's anticipated that the donation will grow significantly.

These events are coming up fast! For more information on these three events, or to register, please visit the upcoming races page on the Runnin' for Research site.

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

Visit MigraineDisease.com

 

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Migraine Pearls to Dr. Todd Schwedt and Dr. David Dodick

Migraine-Pearls-OnionsMigraine Pearls are awarded to the "gems" in the Migraine community for valuable, shining content and support... current and accurate information... things of value. Migraine Onions, on the other hand, are awarded to "stinky" things in the Migraine community — old or inaccurate content... things that perpetuate misconceptions and stigma rather than fighting them... worthless products, eBooks, etc... and more.

Today, I want to award some Migraine Pearls and shine a spotlight on Migraine specialists who also engage in Migraine research. It's been my pleasure and honor to meet and get to know some of these doctors over the years, and their dedication is amazing, inspiring, and something for which I'll be eternally grateful. 

These doctors not only treat patients, but go a step further toward helping to address the problems that their patients face by conducting research — AND they must often be successful in finding the funding to support that research before they can conduct it. Some of these ladies and gentlemen have dedicated their entire careers to doing everything they can to improve our lives. Adding research to a doctor's already busy schedule can also mean that they sacrifice family and personal time to spend more time working.

Dr. Todd Schwedt and Dr. David Dodick — both of whom practice "Headache medicine" at the Mayo Clinic's Headache Center in Scottsdale, Arizona — are two such doctors who have recently sought and received funding, and are about to embark on an important study. One of the biggest problems facing some chronic Migraine patients and the doctors who treat them is which treatment strategy to choose for patients who have both chronic Migraine and medication overuse Headache. There are two primary strategies at present, but neither proof nor consensus indicate which strategy is more effective and efficient and less difficult and stressful on patients. Dr. Schwedt put together a comprehensive grant proposal and applied for funding from the Patient Centered Outcomes Research Institute (PCORI). PCORI approved the application and is funding a five-year study titled Determining the Optimal Treatment Strategy for Patients Who Have Chronic Migraine with Medication Overuse with a grant just over $7.7 million.

So, for all they do — for their own patients and everyone with Migraine disease — I award Migraine Pearls to Dr. Todd Schwedt and Dr. David Dodick.

To Dr. Schwedt and Dr. Dodick, thank you so very much!

Live well,

PurpleRibbonTiny Teri1

 

 because a migraine is NOT "just a headache"

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Are You Ready for More Effective Migraine Treatments?

We can no longer wait for government to fund the basic Migraine research so desperately needed to provide us with better treatments. We must pitch in and help it become a reality.

SO, THIS IS MY CHALLENGE TO MY FELLOW MIGRAINEURS - Donate to the 36 Million Migraine Campaign!
 
The 36 Million Migraine Campaign is an initiative of the American Migraine Foundation, which is chaired by Dr. David Dodick. The 36 Million Migraine Campaign is chaired by Cindy McCain.

From Dr. Dodick:

"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – pl
"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – please help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf

ease help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf

"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – please help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf
"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – please help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf
"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – please help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf
"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – please help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf
"To Migraine sufferers across the United States  - - this campaign, whose goal is to support the discovery of safe and highly effective treatments -- is to lessen the burden and improve the quality of life for you, your children, and future generations – please help us help you." ~ Dr. David Dodick; Chairman, American Migraine Foundation. - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf

"To Migraine sufferers across the United States - - this campaign, whose goal is to support the discover of safe and highly effective treatments --is to lessen the burden and improve the quality of life for you, your children, and future generations - please help us help you."

From Mrs. McCain:
I am here to raise public visibility, put pressure on the powers that be, to help the und of the most disabling medical illness on the planet. Most importantly, it is time for this nation to stop to listen, and to listen well - See more at: http://www.ahmablog.com/2013/07/the-36-million-migraine-campaign-time-for-better-treatments.html#sthash.YJosoiLo.dpuf

"I am here to raise public visibility, put pressure on the powers that be, to help end one of the most disabling medical illnesses on the planet. Most importantly, it is time for this nation to stop to listen, and to listen well."

For more information on the campaign, see:

You can easily donate through the widget here or through the American Migraine Foundation web site. You can also donate via cell phone by texting 36Mill to 50555.

 

Live well,

PurpleRibbonTiny Teri1
 

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© Teri Robert, 2013
Last updated July 22, 2013.


Migraine Research Questionnaire: What Others Think About Your Migraines

QuestionnaireLaptopWhether it's about Migraines or other issues, what others think can influence how we feel and how we think about ourselves.

Researchers in The Netherlands have developed a new tool for measuring the effects of chronic medical conditions on our lives and how other people interact with us. The questionnaire has been used in a rheumatology clinic, and Dr. Dawn Marcus and a colleague want to see how it does with Migraineurs.

How about giving them a hand with their research? Your participation would be greatly appreciated. I've already completed the questionnaire myself.

For more information and a link to the questionnaire, see Research opportunity: What do others think about your Migraines?

Live well,

PurpleRibbonTiny Teri1
 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2013
Last updated March 4, 2013.


Migraine Advocacy, Leadership, and Nonsense

MimeSteepledFingersSome of you who follow me on Twitter (@TRobert) have been asking what's going on with a certain person who has been attacking my integrity as a Migraine patient educator and advocate. I'm not going to give him the attention he seeks by mentioning his name. I'll just refer to him by an appropriate movie reference, "he-who-must-not-be-named."

His motivation is a mystery to me, partly because he contradicts himself often, and partly because he often just makes no sense. He has said that I'm biased because I take money from "big pharma," which isn't accurate. I explained that a while back for you, my readers, not for him, in Migraines, Advocacy, and Big Pharma. Now, he's calling that blog entry "inaccurate" because I said I'm paid for blogging for Migraine.com, and that they provide the site to users at no charge by selling advertising space on the site. Now he's yammering that there are no "big pharma" ads on the site. Maybe you can see my confusion here? First he gripes about there being advertising; then he's giving me 24 hours to prove there are ads on the site or his company will "issue a press" on me. As it turns out, the reason he can't see the ads is that they're only visible to people viewing the site from the U.S. Regardless, there's simply no sense in the aggressiveness or attacks, especially when I've been quite open and transparent about all of my relationships with any company.

That's just a bit of what's been going on with being maligned by "he-who-must-not-be-named." If he lived in the United States, I could consider suing him for libel, defamation, and other things, but he doesn't live in the U.S. I suspect that's part of why he feels he can say the things he does with impunity. Of course, he has tweeted that he enjoys arguing. Go figure!

Twitter will do nothing about him and his Tweets. It's their policy that "differences" between users be sorted out between them. Since he hasn't physically threatened me, they don't even consider what he's doing to be harassment.

In any case, this makes me think of something my college president said, "You know you're being an effective leader when half the people are following you, and half the people are chasing you." Looking at it that way, maybe it's a badge of honor to be attacked by this person. I'm in good company at least. He also claims that some of the best and brightest doctors and researchers in the Migraine field are wrong in their thinking about Migraine disease, claiming that their research is flawed and biased. Yeah, right.

Usually, I'm happy to discuss different theories with people, entertaining the thought that their theories can have merit even though they fly in the face of the current conventional wisdom. In the case of "he-who-must-not-be-named," his approach has resulted in my not wanting to hear anything he says about the theories he supports because he's so certain that only his theories are correct and the fact that he attacks and vilifies anyone who disagrees. 

In the end, he's nothing more than a bully who seems to need to attack other people to prove his worth. I've been responding to him because I want patients to have access to good information and not fall for his rhetoric. I'm through with that. You are more intelligent than to fall for it. In the 13 years I've been working to bring you information and offer you support, I've never misled you, and I never will.  Responding to "he-who-must-not-be-named" accomplishes nothing, reinforces his bad behavior, and - most importantly - takes time that I could spend writing for or supporting people with Migraine and other headache disorders. He'll have to be content with talking to himself because I'm not playing his game any longer.

Live well,

PurpleRibbonTiny
 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2013
Last updated February 12, 2013.

 


Migraine Research - Thanks for YOUR Donation!

Bodd-iPad-Sleeve

I can't let the opportunity pass me by to thank some of my readers for your donation to Migraine research, so...

Thank you!

If you've ever visited my Migraine and Headache Awarness Gift Shop on Cafe Press, you may have notices this statement:

ALL proceeds from the sale of these items will be donated to nonprofit organizations for Migraine and headache research.

Last week, I received a check for $56 from Cafe Press for the sale of items from my shop. When I received the check, I made a donation to The Migraine Research Foundation.

That's why I want to thank those of you who have purchased items from my Cafe Press shop for your donation to Migraine research. The items in the shop are marked up very little, but all proceeds will continue to be donated to Migraine research.

Live well,


 

Puz-only-btn
Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.


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© Teri Robert, 2012
Last updated March 6, 2012.