How We Respond to Migraine & Headache Awareness Opportunities

Research funding for Migraine and other Headache Disorders is woefully lacking. That's nothing new. Advocates have been working on this for years now. Something else advocates have been doing is working to raise funding ourselves, then donating it to trusted organizations who fund research.

In the wake of the ALS Ice Bucket Challenge, Dr. David Watson wanted to come up with a challenge to raise money for Migraine and Headache research funding. Dr. Watson is a Migraineur himself. He's also the director of the West Virginia University Headache Center and an active advocate. Here's the challenge he came up with:

Dr. Watson has blogged about this challenge: Migraine and Headache Awareness - The Hot Wings for Headache Challenge, but the reception to it has been less than stellar in some quarters. This hasn't as much to do with the challenge itself as it has with the way it's been received by some people.

If you've ever organized anything directed toward a group of people, you know that not everyone is going to like it or be happy with it. It's that simple. You absolutely cannot please everyone, and really, there's nothing wrong with that. It's just the way it is because people are naturally different from one another.  If we were all alike, live would be horrendously boring!

Many of us have been tagged on Facebook or otherwise invited or challenged to participate in opportunities or events that we didn't particularly like. It's gonna happen! Let's assume that we've received one for a good cause, but really dislike it for some reason other than the cause, and that there's no harm in the even or opportunity. In fact, since it's so visible right now, let's use the ALS Ice Bucket Challenge for an example.

I was challenged to this ALS challenge. Obviously, it's for a good cause. I had two options - accept the challenge or not. But I have a personal problem with the challenge. Dumping a butcket of ice water over my head would almost certainly trigger one of my Migraines from hell. It simply wasn't worth getting a Migraine, so I accepted the challenge, but made a donation instead of dousing myself with ice water.

This is a reasonable way to accept an event or opportunity that we don't particularly like, and I hope it's something everyone will consider if they're challenged during the Hot Wings for Headache Challenge and when they come across it in blogs, social media, etc.

If you have Migraine or another Headache Disorder, or if you care about someone who does, we're all in this together. It's made me terribly sad to see some comments that went beyond negative and into nasty. That's just not necessary, and it's exceedingly counterproductive. It hurts the entire Migaine and Headache community, not to mention Dr. Watson, who worked hard to come up with this challenge.

So, will you join me? When you encounter awareness events and opportunities, will you look not only at whether you like them or not, but at why they were created and what they were designed to accomplish? Will you join me in being a positive force in the community? I sincerely hope you will.

Positive450

Live well,

PurpleRibbonTiny Teri1
 

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© Teri Robert, 2014
Last updated September 5, 2014.


Some People Deserve to Experience a Migraine - Video

WomanBoxingBlack150Good afternoon, my Migraine family and friends! I hope this day finds as many of you as possible free from pain and doing well.

There are more than 37 million of us in the United States alone who have Migraine disease. Many of us really struggle with Migraines. Approximately 3.2 million Americans have chronic Migraines, which means they have a Migraine or headache at least 15 days a month - or more often than not.

For many, many years, I believed and said that I wouldn't wish a Migraine on my worst enemy. Over the years, the unbelievably callous attitudes of people have changed my mind. There ARE people upon whom I'd wish a Migraine.

This afternoon, a Google alert caught my attention and led me to some of those people. The alert led to this video:

As the video went on, did you notice laughter in the background? Did you notice that the guy on the right was laughing so hard he could barely stand? What jerks! Have they ever felt a moment of pain in thier lives?

So, yes, I DO wish a Migraine on the people who created that video. What's more, I wish those who find it funny could experience just one severe Migraine so they'd know what we experience. I'd bet they wouldn't find it so damned funny any longer.

I don't get it. Is the world going to hell in a hand basked as the old expression goes or what? We have innocent people being gunned down in movie theaters and people who are so stupidly self centered that they can't recognize the pain and suffering of others. Obviously, I can't begin to address the problems of the world, but you can bet I'm going to stand up and object when I see such cruelty and stupidity show about Migraine and those who live with it!

To those of you who are working to help others, God bless you! To those of you doing things such as this video -- Look out. Karma's a bitch!

Live well,

PurpleRibbonTiny
 

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© Teri Robert, 2012
Last updated September 2, 2012.


Living with Migraines - Thoughts on a Sunday

ThoughtsSunday2

It's been a tough week in the Migraine and headache community, and that's really an understatement. Everywhere I turn, people are suffering, physically and emotionally.

The weather seems to have a personality disorder - it can't decide if it's winter or spring. That's triggering Migraines for many of us. Cluster sufferers are having a tough time too.

There was a suicide in the community last week. I don't know if I'm more sad or angry about it. I'm sad for the woman who took her life, but I'm so angry at her ex-husband that he should be glad he'll never have to face me. He's one of those not-a-freakin-clue jerks who is so selfish that he divorced her over her Migraines. If I had my way, he'd meet the fate that servants used to face in ancient Egypt and be buried with her. The stigma of Migraine stuck again.

OK, taking some deep breaths here. A friend of mine, Mary Seroski, sent me a link to a YouTube video that I just have to share with you. It's undoubtedly the most beautiful video I've ever seen. I watched it and marveled at the beauty of it and of all of God's gifts it depicts. It gave me hope. I hope it will do the same for you...

Live well,


 

Puz-only-btn
Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2012
Last updated February 26, 2012.