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Migraine Research: MRF Accepting Funding Requests

MRFLogo166 One of the biggest hurdles to effective Migraine management is the lack of research funding. The  Migraine Research Foundation wants to change that. To that end, they raise and distribute funds for Migraine research. The expenses of running the MRF are underwritten, so very dollar donated to the MRF goes into research.

The MRF has just issued a new request for proposals (RFP) for research grants. In infomration just released, the MRF states:

The Migraine Research Foundation is committed to furthering the understanding of the causes and mechanisms of migraine, helping to develop improvements in treatment, and finding the cure. We believe that migraine research is very important and under-funded. As a result, MRF is actively seeking to provide seed money grants for projects that are important, achievable, and innovative that will ultimately lead to better treatment and quality of life for migraine sufferers.

While MRF welcomes all proposals relevant to migraine research, this year we are particularly interested in projects related to three areas: (1) pediatric/adolescent migraine that will expand knowledge of epidemiology, mechanisms, genetics, and comorbidities of pediatric headaches, (2) migraine in women, and (3) chronic migraine.

To read more about the MRF's reuqest for proposals, see Migraine Research Foundation Announces New Request for Proposals.

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image from banners.copyscape.com Teri Robert, 2010
Last updated July 31, 2010.


Migraine and Prevalence of Dizziness and Vertigo

DizzyWoman166pxDizziness and vertigo are sometimes reported as symptoms of Migraine attacks. Researchers at the University of North Carolina, Chapel Hill, have been looking at possible symptoms of Migraine and their prevalence. In a recent study, they looked at dizziness and vertigo.

It should be noted that dizzines and vertigo are not the same thing:

  • Dizziness is a general sense of disequilibrium, of being off-balance.
  • Vertigo is a subtype of dizziness that gives the feeling or illusion of movement.

The objective of the study was:

"To determine the prevalence of subjective complaints of dizziness or vertigo in Migraineurs attending a specialty headache clinic."

To find out more about this study, the results, and the implications, read Migraine and Prevalence of Dizziness and Vertigo.

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� Teri Robert, 2010
Last updated July 30, 2010


Migraine Blogging and the Versatile Blogger Award

VersatileBlogger200x200 It's always nice to know that someone enjoys my blogging about Migraines and headaches. It's especially nice when that someone is a fellow Migraineur and Migraine blogger. So, it was especially touching to receive the Versatile Blogger Award from Migraine Puppet.

There are some "rules" to accepting this award, so here we go...

Rule #1: Thank the person who gave you your award.
With pleasure! Thank you, Migraine Puppet! for passing the Versatile Blogger Award on to me. I've been reading your blog since you started it, and it's wonderful. You choose topics that are near and dear to Migraineurs, and you write so conversationally that it's a true pleasure to read your blog.

Rule #2: Share seven things about yourself:

  1. I have nine grandchildren and two great-nieces. 
  2. The first Migraine I remember occurred when I was six-years-old.
  3. Three of our grandchildren have Migraines.
  4. I believe that optimal health care can be achieved only when patients are educated about their health and patients and physicians work together as treatment partners in an atmosphere of mutual respect.
  5. I also believe that that person with the most at stake gets to be in charge. When that comes to our health, that's us, not our doctors. So, we need to take charge of our health.
  6. A day with no internet access will drive me up a wall.
  7. My favorite color is red.

Rule #3: Pass the award on to 15 bloggers whom you have recently discovered and who you think are fantastic!

  1. Against the 'Graine
  2. A ClusterHead's Life
  3. A Chronic Dose
  4. The Daily Headache
  5. Doctor Grumpy in the House
  6. Every Patient's Advocate
  7. Free My Brain
  8. Headache News Blog
  9. Jasmine's Cove
  10. The Migraine Girl
  11. Mom Migraine
  12. Somebody Heal Me

Well, that's only 12 blogs, but some of my favorite bloggers haven't updated their blogs for a long time. Hopefully, that means their Migraines are better controlled, and they're out having fun.

Rule #4: Contact the bloggers you picked and let them know about the award. Will do!

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© Teri Robert, 2010
Last updated July 29, 2010

Maria Marotta, a Life Lost to Migraine

The hopelessness of Migraine has claimed another life. Maria Marotta, the wife of legendary comedian Rich Little, gave up on her battle with Migraines and took her own life Thursday, July 15. She was in her early 40's.

Marotta and Little met on a blind date and were married in Hawaii in 2003. Prior to the wedding, Little joked that he planned to say, "I do," in all 160 of the voices he had imitated during his career.

Long time friend Gord Atkinson told reporters:

"Rich was distraught and said that he had lost the love of his life. He said she was everything to me... She left him a loving note and said that she couldn't go on... The pain she had was too excruciating and she couldn't cope with it anymore... The pain was becoming unbearable for Marotta and she didn't know what else to do anymore."3

Atkinson commented that Marotta had seen a number of doctors, but had never been able to determine why her Migraines were so severe.

Unfortunately, Marotta is not the first Migraineur to give up the battle and take her own life. Rich Little isn't the first to lose someone dear to him because of this disease.

When I was reading the news articles about this, I found myself wondering why Marotta chose to give up rather than continuing to see answers. One would think that a woman in her position would have the financial resources to seek treatment wherever she wanted, and from what's been said about how much Little loved her, one would think that he was very supportive.

Still, the pain and other debilitating symptoms of Migraine take their toll. And, not everyone is comfortable asking questions of doctors and continuing to yet another doctor if not making progress. I suspect that more people take their lives because of severe Migraines than we'll ever know. We know about this case because Marotta was married to a celebrity.

Please, if you find yourself considering harmful measures or taking your life because of Migraines, stop and get help. We still need far more research, and treatments are far from perfect, but we have more treatment options than ever before. Partly because of the Internet, we have more information and support resources available than every before. Please, don't let Migraine take you away from your life and your loved ones.

____________
Resources:

1 Clarke, Norm. "NORM: Rich Little's wife left a loving note." Las Vegas Review-Journal. July 18, 2010.

2 Leach, Robin. "Condolences to Rich Little on the death of his wife Marie." Las Vegas Weekly. July 16, 2010.

3 Lofaro, Tony. "Rich Little's wife dies of apparent overdose." Montrealgazette.com. July 16, 2010.


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Last updated July 19, 2010.


Migraines Are Curable - Not Yet!

MTruthWOfBlogMigraines Are Curable! That was the title of a blog entry that Arabella wrote about on her blog, Migraine Truth.

I don't have a problem with the title of the blog entry, but I had as many problems with the actual blog post as Arabella did. The author of that post had read an article by Dr. Allan Purdy, a wonderful Migraine expert, who had used the same title for a recent research paper he wrote. The difference is that Dr. Purdy was NOT saying that Migraine us curable at this time, but the blogger had taken parts of Purdy's paper out of context and made some statements that just didn't fly.

After Arabella wrote her post, several of her readers commented, as did the chiropractor who had written the original blog entry. I'm not going to say more here because I really hope you'll take a few minutes to read Arabella's blog and the ensuing comments on her post.

Please read Migraines are Curable - Here We Go Again. I also encourage you to post comments and take part in the discussion there. It's interesting, AND the writer of the offending blog entry needs to hear from all of us.

To Arabella, great job! Thank you for your vigilance.

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Last updated July 5, 2010


My Mother: Also a Migraine Sufferer

MomAndDad166Migraines. Did you know that Migraine is a genetic neurological disease? When one parent has Migraine disease, children have a 50% chance of inheriting it. When both parents have Migraine disease, the odds jump up to 75%.

My mother, Marjorie Fulton, was a Migraineur. Her father and grandmother had Migraines too. In hindsight, we think Dad had Migraines too. He used to go to bed for days at a time with what he thought were sinus headaches. Now, we know that in at least 90% of cases, what people think are sinus headaches are actually Migraines. You can read more about this in Sinuses Giving You a Headache? It's Probably a Migraine.

Even though Mom was accurately diagnosed, the years when she had severe Migraines were before the triptans and most of the other abortive medications we have today. DHE and Cafergot were available, but they made her blood pressure spike dangerously high. I mostly remember her treating her Migraines by injecting herself with Demerol. Not a pleasant way to live. Fortunately, for her, Mom's Migraines were mostly triggered by the hormonal fluctuations of her menstrual cycle, and they simply stopped after menopause. Hormonal fluctuations were never a trigger for me, and menopause did not mark the end of my Migraines. Mom and I are a good example of the fact that even though we inherit the disease, our patterns won't necessarily follow those of our parents.

Mom passed away last weekend after having been ill for quite some time. I was in Los Angeles at the American Headache Society conference when it happened, and I will always be grateful for and appreciative for all the support I received. Nancy Bonk, who works with me on MyMigraineConnection.com was at the conference with me, and it was an enormous help that she was there, especially since that meant I wasn't alone and pacing the floor in my hotel room that night. Dr. John Claude Krusz was there with me just minutes after I learned Mom had passed. Many of the doctors, American Headache Society staff, and other people attending the conference offered me their shoulders and their cell phone numbers in case I needed anything. To all of you, thank you. It may sound strange, but I may well have handled things better that I would have at home because you all gave me strength, and the conference events kept me busy.

People have asked me about sending flowers and about memorials for Mom. We handled things very simply, having a quiet family dinner / memorial in Mom's memory yesterday evening. My brother and I will be scattering her ashes privately, with no further memorial ceremony. The support I've received from so many people is really all I need, but if anyone wants to do something, please make a donation to the Migraine Research Foundation at www.MigraineResearchFoundation.org or the American Migraine Foundation at www.AmericanMigraineFoundation.org in her memory. Migraine treatment made great strides during Mom's lifetime and mine. Two of her grandchildren and three of her great-grandchildren have Migraine disease, so I know those donations would make her happy because they would help make things better for those children and all Migraineurs everywhere.

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Page copy protected against web site content infringement by Copyscape© Teri Robert, 2010
Last updated July 2, 2010