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Review: Goodnighties Sleepwear and Migraine Comfort

Goodnighties166 When Migraines strike, we need many things. Of course, we need our treatment to stop the Migraine and its symptoms. We also need comfort. Comfort measures can be as important to us as treatment.

Migraines strike us in many ways. There's more to a Migraine attack than the headache. In fact, for a diagnosis of Migraine, symptoms other than headache are necessary. There are many potential symptoms of Migraine.

One symptom that I find especially bothersome is chilling, then feeling overheated. One minute, I'll be huddling under the covers; the next, I'm throwing off all the covers and feeling hot and sticky. A few months ago, Karen Lee Richards, who writes for ChronicPainConnection.com, told me about a new kind of sleepwear she had tried. She had thought of me because she knows that Migraines can make us so miserable. This led to my testing a nightgown made by Goodnighties...

Please continue reading Review: Goodnighties Sleepwear and Migraine Comfort.

Live well,


PS: Want to try Goodnighties yourself, free? If so, after you read the review, come back here, click the add comment link below, and tell me how to wash Goodnighties and how long you've had Migraines. The first person to respond will receive a free gown or pair of pajamas. Thanks for your replies on this! Hopefully, I'll be able to do this again in the future.


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© Teri Robert, 2010
Last updated August 28, 2010.


Migraine Matters: UK Migraine Awareness Week 2010

MigraineMatters175 September 5-11 is Migraine Awarenss Week 2010 in the United Kingdom. This year, The Migraine Trust, the sponsor of the awareness week, wants to highlight that one in seven people in the UK have Migraine disease. Their focus is on why "Migraine matters" and why it should be taken serously. They note that:

"Many people think that migraine doesn’t matter because it can’t kill you, it’s not contagious and it’s mostly episodic. Migraine is all too often trivialised as “just a headache” but we know that migraine can be extremely disabling and can destroy peoples' lives."

Migraine matters because...

Migraine affects millions of people:

  • 1 in 7 people suffer from the condition, that’s over 8 million people in the UK alone (37 million in the U.S.).
  • Migraine affects 8% of men, 18% of women.
  • More people have Migraine than diabetes, epilepsy and asthma combined.

Migraine is potentially disabling:

  • The World Health Organisation has listed migraine in the 20 most disabling conditions.
  • Symptoms can include throbbing head pain, nausea, vomiting, neck pain, increased sensitivity to light and sound, temporary blindness, temporary one-sided paralysis, disturbed vision, and much more.
  • 80% of people say that their migraines cause them severe pain.

Migraine destroys lives:

  • Migraine disrupts education, employment, family and social life - everything.
  • An estimated 25 million days are lost from work or school every year because of migraine.
  • Migraines can continue for a lifetime.

The Migraine Trust needs our help with getting the word out, no matter where we live. Migraine Awareness anywhere benefits Migraineurs everywhere. The Migraine Trust has special events scheduled for Awareness Week, including:

  • The Adidas Women's 5K Challenge
  • Migraine and Headache - an information event with leading Migraine experts

For information on these events and ways we can help, please visit their Migraine Matters information page.

Migraine Action in the UK is also observing awareness week with emphasis on Migraine in the workplace. You can read more HERE.

You can also find awareness week information on the site of the Migraine Association of Ireland, HERE.

Live well,


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© Teri Robert, 2010
Last updated August 28, 2010.


That Migraine Smacked Me Down!

image from www.msteri.com Yesterday was one of those days when a Migraine attack got the best of me. It smacked me down really hard.

As I've heard from many of you, this summer has been a real trial. The weather changes and thunderstorms have been more frequent and severe than I remember them being for quite some time. A weather front moved through our area Sunday night, and I woke up totally miserable yesterday morning.

After getting my morning coffee ans stumbling to my office, I was awake and alert enough to realize I was in trouble. It was one of those Migraines where the nausea was at least as bad as the headache, so I grabbed and swallowed a dose of meds for nausea first. Then my abortive, Axert.

The meds worked, but I wasn't anywhere near as productive as I needed to be, especially since Monday is my busiest day. If you're subscribed to my newsletter, Putting Our Heads Together, it will be going out tomorrow instead of yesterday. I hate to be late, but I'm sure you understand.

This time, the nausea and exhaustion were the worst symptoms. Oh, and aphasia! I had trouble working because I couldn't think of the words I needed. UGH! If you want to read more about the possible phases of a Migraine attack and their potential symptoms, take a look at Anatomy of a Migraine.

I'm curious. Do you have symptoms that are worse than the headache of a Migraine attack? If so, what are they? Please click the "Comments" link below and share with us!

Live well,


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© Teri Robert, 2010
Last updated August 24, 2010


Migraines, Suffering, Suicide, and Hope

HangOn166 This, week, I've seen people with Migraines talking about suicide. One of them attempted to take her life over the weekend. If I'm honest, I have to admit that I had suicidal thoughts several years ago, when my Migraines were at their worst.

You probably know the feelings that bring people to this point...

  • the hopeless feeling that we're going to spend the rest of our lives being in pain and debilitated most of the time...
  • the frustration of people around us not understanding that a Migraine isn't "just a headache" that can be "cured" with aceteminophen, aspirin, or ibuprofen...
  • the fear of when the next Migraine will hit, and the fear of leaving home because if it...
  • the anxiety and feelings of inadequacy when fearing losing our jobs...
  • the despair of losing relationships with family, friends and coworkers...
  • the loss of hope of having any quality of life...
  • and on, and on, and on.

All of these feelings can build until we don't see a reason to continue living, to where we just want it all to end.

When we're feeling that way, most online support groups and forums arent the place to turn for real help. The people there aren't trained to help someone who is feeling suicidal. The first thing to do at such times is talk to a trained professional. If we have a counselor, psychiatrist, or psychologist, that's the place to start. There are also hotlines we can call:

  • 1-800-273-TALK,
  • 1-800-SUICIDE,
  • and for teens, the Boys and Girls Town National Hotline at 1-800-448-3000.

There's also the option of going to a hospital emergency room and asking for help. Once the immediate crisis has passed, online support can be valuable to help us.

But, how do we keep from getting to that point in the first place? How do we live with the pain and all the rest while we work on a good management regimen? This is why we need to be honest with ourselved and our health care team and work on our coping skills. I really think there are times in our lives when all of us can use help with coping skills. This is one reason so many Migraine and headache clinics have psychologists and psychiatrists on staff. It's not to tell us it's "all in our heads."

When I first visited the Jefferson Headache Center in Philidelphia, a psychological profile and exam was part of my first appointment. I had to see the psychiatrist before I saw Dr. Young, my Migraine specialist, and I had a huge chip on my shoulder about it. Knowing this, the first thing Dr. Tramuta did was address my question, "Just why do I have to see you, and see you even before I see Dr. Young?" He had a two-part answer to my question:

  1. He was to screen for depression. If I had a depressive disorder, was I being treated for it? If so, was the treatment working well.
  2. He was to evaluate my coping skills for living with a chronic disease, and set up appointments to help me develop better coping skills if necessary.

PLEASE, if you're having problems coping with Migraines, or any illness for that matter, seek professional help. There is NO shame in it. No need to be embarrassed. Ask your doctor for help, for a referral to a counsellor, psychologist, or psychologist. Get screened for depression, and if you're diagnosed with depression, get treatment. The prevalence of depression in the general population is 17%. Among Migraineurs, it's 47%. IMajor depressive disorder is a disease too, and there are treatments. I'm among the 47% of Migraineurs with major depressive disorder. With treatment for the depression, I'm so much more able to cope with Migraines, stressors, and life in general.

It breaks my heart to see people in so much distress and thinking of taking their lives. It doesn't have to be like that. It can take time to find an effective Migraine management regimen, but it can be done. If you're not making progress, consider a new doctor. No doctor right for every patient. Keep in mind that neurologists and pain management doctors aren't necessarily Migraine specialists. Find a Migraine specialist. Tie a knot in the end of your rope, and hang on while you get whatever help you need with coping. Find a discussion forum or some other way to talk with other Migraineurs so you don't feel alone. Remember that we need to take care of ourselves -- body, mind, and spirit.

Live well,


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© Teri Robert, 2010
Last updated August 20, 2010


New Migraine and Headache Clinical Trials

Cady100 Dr. Roger Cady and his research group have let me know that they have some new Migraine and headache clinical trials that are recruiting participants.

If you live near Springfield, Missouri, you may be interested in some of these trials:

Evaluating the Effectiveness of Early Acute Treatment vs. Preventive Treatment for Migraine

Did you know that 60-80% of migraine sufferers experience signs before a migraine attack that may actually predict the onset of a headache? These signs are referred to as prodrome and may include symptoms such as muscle aches, food cravings, mood changes, decreased or increased energy, difficulties with memory or concentration and even excessive yawning.

If you:

  • Are age 18 or older
  • Experience prodrome symptoms as described above
  • Have never taken Frova® or Topamax® for migraine treatment or prevention
  • Live near Springfield, Missouri

Please consider enrolling in this medical research study. Qualified candidates will receive study related medical evaluations and study medication at no charge plus compensation for time and travel. For more information, please contact call 417-883-7889.

• • • • •

Have you had a mild head injury that has left you with chronic headaches?

Clinvest is conducting a medical research study testing an approved migraine drug to see if it safely and effectively relieves post traumatic headaches.

If you:

  • Are between the ages of 18 and 65
  • Have had a problem with headaches since the injury
  • Have trouble with concentration and memory due to the headaches
  • Live Near Springfield, Missouri

Please consider volunteering for this medical research study. No insurance is necessary because if you qualify and choose to participate you will receive all study related medical evaluations and study drug at no charge. Compensation for time and travel is also provided. For more information, please contact 883-7889.

• • • • •

Help Us Learn More About the Effects of Migraine On Work Productivity

Workers who experience migraines suffer approximately a 50% decrease in work productivity. Help us learn more about how 2 different treatments affect the way you function at work by volunteering for this medical research study.

Please consider participating if you:

  • Are age 18-65
  • Work at least 30 hours each week
  • Are able to complete 1-2 minute hourly assessments from your cell phone when treating 4 headaches at work
  • Routinely treat your headaches with a Triptan or Treximet®
  • Live Near Springfield, Missouri

Study participants will receive compensation for time and travel. For more information, please contact Clinvest at 417-883-7889.

• • • • •

Do You Suffer from Chronic Headaches?

Clinvest is currently recruiting volunteers to participate in a medical research study to see if an investigational drug reduces the number and severity of chronic headaches.

If you:

  • Are age 18-65
  • Experience a headache on 15 or more days each month
  • Are willing to help find a way to manage chronic headaches
  • Live near Springfield, Missouri.

Please consider enrolling in this medical research study. Qualified candidates will receive study related medical evaluations and investigational drug at no charge. Compensation for time and travel is also provided. For more information, please contact Clinvest at 417-883-7889.

• • • • •

New Class of Investigational Migraine Drug Being Tested for Menstrual Headaches

That time of the month can be challenging enough without having to endure a
headache, too.

If you:

  • Are age 18 or older.
  • Have experienced a headache during at least 1 of your last 3 monthly cycles.
  • Live near Springfield, Missouri.

Please consider volunteering for this medical research study. If you qualify and choose to participate you will receive:

  • All study related medical evaluations and investigational drug or placebo (inactive substance) at no charge.
  • Compensation for time and travel.

For more information please contact 417-883-7889.

Live well,


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© Teri Robert, 2010
Last updated August 16, 2010


Keeping Up with Migraine Information

POHTButton Do you like to keep up with information about Migraine and other headache disorders? It can be hard to do, especially if you're in pain and don't feel like surfing the Internet.

The Putting Our Heads Together email newsletter can help. The newsletter goes out on Mondays, and it's totally free. I respect your privacy, and your name and email address will NEVER be shared with anyone.

Putting Our Heads Together includes links to:

  • Information from www.HelpForHeadaches.com
  • Information from www.MyMigraineConnection.com
  • Blog entries by Nancy Harris Bonk, me, and other Migraine bloggers
  • Information from nonprofit organizations including the American Headache Society, American Migraine Foundation, Migraine Research Foundation, and others.
  • More...

You can subscribe to Putting Our Heads Together from the subscription box in the left column of this blog.

Live well,


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© Teri Robert, 2010
Last updated August 14, 2010


Crazy Thinking About Migraines

Today is a rare day... I was reading some email and came across one about the way I think about Migraines. I'm not going to start anything by saying who sent the email, but here's a snippet from it:

"You and your friends are crazy with your thinking about migraines. Crazy mental patients. You and neurological dictors. I will hope for cure for your mental condition."

I laughed harder than I've laughed in ages. The email also made me think about a video I came across a while back. Since I shared part of the email with you, I'll share the video here too. Now, I'm not comparing myself to the people in the video, but I think I'm in pretty good company. Don't you?

Live well,


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© Teri Robert, 2010
Last updated August 12, 2010


Two New Migraine Clinical Trials Open

Aurora125 Do you or your child have Migraines? If so, you may be interested in two new clinical trials that are now enrolling participants.

You may know of Dr. Aurora of the Swedish Headache Center in Seattle Washington. She's not only a wonderful MIgraine specialist, but also a productive Migraine researcher.

There are two new trials enrolling participants at the Swedish Headache Center there. Below are details and contact information. If you're interested, please email or call them:

Does your child experience Migraine headaches?
If you have answered YES to this question, and your child is 12-17 years of age, and experiences two or more Migraine headaches a month, he or she may be able to help us with a clinical research study.

For more information, please contact:

Pat Barrodale, R.N.
Swedish Headache Center
Phone 206-386-2295
E-mail: pat.barrodale@swedish.org

Do you suffer from Migraine headaches?
If yes, you may be eligible to participate in a clinical research study of an investigational drug for Migraine prevention. You may qualify for this study if you:

  • Are a female with regular menstrual cycles and are at least 18 years of age.
  • Have at least two major Migraine headaches per month.
  • There is no cost to participate and compensation may be available.

Interested?

Please contact:

Pat Barrodale, R.N.
Swedish Headache Center
Phone 206-386-2295
E-mail: pat.barrodale@swedish.org

Live well,


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© Teri Robert, 2010
Last updated August 11, 2010