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November 2010

First NHF Headache and Migraine Regional Conference in November

Would you like to learn more about Migraines and headaches... spend some time with others like you... meet and hear from leading doctors in the field?

If so, the National Headache Foundation (NHF) is hosting an event that will interest you...

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In Dallas on Friday, November 12, the NHF will be hosting Awareness 2010, the Many Faces of Headache for Migraineurs, people with headache disorders (such as cluster headaches, etc.) and their families.

The doors will open at 5:30PM for registration, refreshments, and an exhibit area featuring local practitioners and national companies (pharma, medical equipment, on-line resources, et cetera).  During this time, we will ask participants to offer questions they would like to hear answered by our experts – the most common topics will be covered first but there should be time for follow up questions from the floor.

At 7:00, the keynote speakers, Dr. Susan Hutchinson and Dr. Bob Kaniecki, will lead off followed by the introduction of the panel.  We are still working out some details on the order of events after this but there will be presentations from the three Dallas doctors and some panel discussion focusing on the questions we gathered.  Additionally, there will be a presentation featuring people sharing their personal stories related to Migraine.

You can find more information about the conference and registration in this letter from NHF Executive Director Bob Dalton and this brochure.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 25, 2010


Use Migraine to Get a Discount on Goodnighties

Goodnighties166 A while back, I wrote a review of Goodnighties and shared with you that my Goodnighties gown helps make me more comfortable during a Migraine. It's also helped relieve some of the night-time discomfort of post-menopausal hot flashes.

I'm still loving my Goodnighties, and today, I'm able to tell you that from now through the end of November, you can get a 25% discount on Goodnighties gowns and pajamas. This is a special promotion for you, my readers, and it's just in time for the holidays too.

Whether you'd like to try goodnighties yourself, would like to buy a gown or pair of PJs as a gift for someone else, or both, now's the time. Just shop their website, www.goodnighties.com, and enter the word MIGRAINE in the promotions box when checking out.

And to the kind folks at Goodnighties, thanks!

Live well,


 

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© Teri Robert, 2010
Last updated October 24, 2010


Migraine Research: What's New

Keeping up with what's new in the world of Migraines and other headache disorders can be difficult. It seems as if it goes in cycles with not much new for a while, then lots of new research coming out. To add to the difficulty, many Migraineurs simply don't feel well enough to search for information, and when they do feel well, they have too many things they want and need to do.

We seem to be in one of those periods where quite a bit of research is being reported, so I thought I'd pull some links together in one spot for you. Here are some articles of special interest from the last few months...

WomanNeckPain83 Nausea is one of the symptoms we think of first when we think about Migraine symptoms. The International Headache Society lists nausea as one of the defining symptoms of Migraine. Over the years, many Migraineurs have mentioned or asked questions about neck pain during a Migraine attack. Researchers recently published the results of a study to look at the prevalence of neck pain in Migraine. More info in Migraine and Neck Pain - A New Study.

Genetics83 One problem holding up development of better Migraine treatments is that there is still much that is not well understood about the disease. This includes the pathophysiology of Migraine and the genetics of Migraine. Now, a world-wide collaboration of researchers has identified the first-ever genetic risk factor associated with common* types of Migraine. The researchers, who looked at the genetic data of more than 50,000 people, have produced new insights into the triggers for Migraines attacks and they hope their research will open the door for novel medications to prevent Migraine attacks. More info in First Genetic Link for Common Types of Migraine.
 

DNA83 Researchers have identified a gene mutation that could impact triggering Migraines and provide a direction for developing new treatments. Using DNA samples from multiple generations of a large family with Migraine with aura, the researchers were able to identify the mutation on a gene known as KCNK18 or TRESK that was common to the members of the family. It's believed that this mutation alters the electrical activity in certain brain cells. When this gene doesn't work as it should, Migraine triggers can more easily bring on a Migraine attack... More in KCNK 18 TRESK Gene Implicated in Migraine.
 

Botox83 Following years of Botox® (onabotulinum toxin A) being used off-label to treat Migraine, the FDA has now approved it for the treatment of Chronic Migraine, which is defined in the FDA approved prescribing information a Migraine 15 or more days per month with headache lasting four hours a day or longer... More in Botox Approved by FDA for Chronic Migraine.
  

Goodnighties83 This isn't exactly Migraine research, but I wanted to bring it to your attention anyway. In August, i tried some new sleepwear and published Review: Goodnighties Sleepwear and Migraine Comfort. One reason I wanted to bring this up again is that we're being offered a 25% discount on Goodnighties through the end of November. If you're interested, shop the Goodnighties web site and enter the discount code MIGRAINE when checking out.
 

One problem holding up development of better Migraine treatments is that there is still much that is not well understood about the disease. This includes the pathophysiology of Migraine and the genetics of Migraine.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 23, 2010


FDA Has Approved Botox for Chronic Migraine

Botox100 If you have chronic Migraines, you'll be interested to learn that the FDA has approved Botox for the treatment of chronic Migraines.

Chronic Migraine is defined as Migraines 15 or more days a month, lasting at least four hours per day.

Botox has been used off-label for Migraine for quite some time. What does the FDA approval mean for patients?

Read more in Botox Approved by FDA for Chronic Migraine.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 19, 2010


FDA Approves Botox for Migraine

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The FDA approved Botox for Migraine prevention on Friday, October 15. Please check back here for more details in the next few days.


Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 15, 2010.


October 2010 Migraine and Headache Blog Carnival: Hobbies and Coping

BlogCarnival125 Welcome to the Oct., 2010, Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the October carnival is "How have your hobbies helped you cope with your headache disorder?"  This month's carnival is hosted by Diana Lee, the founder of the carnival, on her blog Somebody Heal Me.

Are you ready to read some great posts? On to the October, 2010. Headache & Migraine Disease Blog Carnival: Hobbies and Coping.

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 11, 2010.


Happy Birthday, John Lennon

Listening to music often helps me deal with a Migaine while I'm waiting for the medications to kick in. One of my favorite artists of all time will always be John Lennon. It still seems impossible that he was murdered.

Happy Birthday, John! Enough said...

 

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 9, 2010


Coping with Migraines via My Hobbies

Migraines and other headache disorders have such a huge impact on our lives that we sometimes lose track of activities we enjoy, including our hobbies. But, we need those hobbies -- both to retain as much of our lives as possible and to help cope with our Migraines and/or headaches.

When my Migraines were frequent, hobbies were an important way to hang on to parts of my life. Now that they're well managed and far less frequent, I use my hobbies to help take my mind off a Migraine when I get one, to help get through that period of time when I'm waiting for my medications to work.

A bit about my hobbies...

AromatherapyTools Aromatherapy is fascinating to me, AND it helps with some of my Migraine symptoms. Depending on how I'm feeling during a Migraine, I may choose one of several different uses of essential oils:

  • Peppermint essential oil is great for nausea. I've used it with some dead sea salt in a small bottle to make smelling salts. Sometimes, I'll put a bit on my temples too. Be careful with it though. It should never be applied directly to the skin without diluting it in a carrier oil because it's too irritating to the skin. Fractionated coconut oil is an excellent carrier. The fractionated oil doesn't have a coconut smell. It's light, and if you get it on your clothes or linens, it washes out more easily than many other oils.
  • The only time I've ever experienced a panic attack was as a symptom of a Migraine. Citrus oils are great for any type of mood issues. I particularly like lemongrass and red Mandarin essential oils, and they can be used in the same way as the peppermint oil.
  • Another great way to use these oils is with a diffuser. Diffusers release the fragrance into the air. They're best used in smaller rooms, and I prefer the electric ones to those with candles for safety issues.

I hate shopping, and it's hard to find good quality essential oils where I live, so I buy my aromatherapy supplies online at www.NaturesGift.com.

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Kindle I love to read. Unfortunately, I have some vision issues that have made reading more difficult, not to mention that a Migraine can make reading more difficult too.

Amazon's Kindle has helped me get back to reading! It's easy to adjust the font size, and that's one big issue solved for me. The screen doesn't have a flicker or refresh rate, which keeps it from being a Migraine trigger. Plus, on the new Kindle 3, the screen has a soft gray background, which is far easier on the eyes than white backgrounds. I use my Kindle to read pretty much everything from fiction to Migraine books to NY Times Bestsellers.

We've even become a two-Kindle household. LOL! I also love my Kindle for travel because I can take so many books with me, and it's literally smaller than many paperback books.

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Writing poetry is another of my hobbies. There's something cathartic about writing poetry. Yes, I was one of those "sappy" teenagers who wrote poetry about every "broken heart."

Over the years, I've found that writing about Migraines or depression to be very therapeutic. When I don't want to "burden" my family and friends with my pain or depression, I pout it out into poetry. Writing during a Migraine can be difficult physically. Usually, I don't feel like sitting at the computer, so I keep "blank" books handy to write in. If you look, you can find them with off-white, blue, gray, or other colored paper so you're not faced with the glare of bright white paper. A lot of what I write when I'm not feelign well stays in the books just for me. When I write something I actually like, I can type it up when I'm feeling better. Other MIgraineurs have also found writing poetry to be a good outlet, so I hold the Putting Our Heads Together Poetry Contest every year.

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Amethyst For some reason, I've always loved pretty stones and crystals. In the process of researching possible treatments for Migraines and headaches, I came across some writings about crystal therapy. The basic theory is based on how the atoms of matter vibrate. The atoms in everything vibrate, and the theory of crystal therapy is that the crystals vibrate on frequencies that interact with our bodies and aid in healing. That makes some sense to me, and having crystals around can't hurt anything. So, why not? The crystal most associated with helping Migraines and headaches is amethyst. One thing to know about amethyst is that it fades if left in direct sunlight. If you like amethyst, and want to keep it around, put it somewhere out of the sun.

What are your hobbies? Do you use them to help you cope with Migraines or headaches? Let's talk about it! Just click the "Comments" link below to share your thoughts and experiences.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2010
Last updated October 8, 2010