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Posting Comments on Migraine Blogs

MimeSteepledFingers125 There's a lot to say about Migraines. That's one reason why there are so many bloggers writing about Migraine and other headache disorders.

When I write a blog entry, I love it when readers post comments. Legitimage comments. Unfortunately, I'm seeing a growing trend in the comments posted to my blog. Spammers.

Spammers are getting more devious about their comments too. Many of them try to disguise their spamming by actually writing a comment that's relevant to the blog. BUT... they reveal themselves as spammers by putting the URL to a commercial web site in the URL field on the comment form. That makes the name they've entered a live link that, when clicked, takes people to their site, hoping they'll bite and buy something. Personally, I think doing that is reprehensible. It's preying on people who have a disease and come to my blog looking for information and help. I think these people are the scum of the earth and wish that earth would open up and swallow them.

So...

To my real readers who have something to say - please do comment! You're the reason I allow comments to be posted to my blog. I promise to keep the comments spam-free.

To the spammers who post this kind of poorly disguised spam -- go away! You're not as clever as you think you are. Yes, your comment gets posted to my blog. BUT, I check the comments daily, and if they're spam, take action. Not only will I delete spam comments, I'll go a step further. I'll report you for spamming and block your IP address.

Live well,


 

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© Teri Robert, 2011
Last updated January 26, 2011.


Migraine Pearls or Onions? 1/26/11

PearlsOrOnions150x100 When it comes to online Migraine information, the quality of what we find has quite a wide range. It can be bright, polished, and valuable, or it can be... well, rough and stinky.

This feature, "Migraine Pearls or Onions?," highlights both the Migraine Pealrs I come across online and the stinky Migraine Onions.

So, first up...today's Migraine Pearl... the Migraine Research Foundation (MRF). One of the biggest problems facing Migraineurs is lack of adequate research founding. The Migraine Research Foundation was started to help with this problem. With all of their operating expenses underwritten, 100% of every dollar donated goes to Migraine Research.

Last week, the MRF announced the recipients of their 2010 research awards. There are seven of them this time, and the research looks quite interesting and promising. You can read more about the MRF, the research they're funding, and this year's recipients in Migraine Research Foundation Awards 2010 Research Grants.

Now, on to today's Migraine Onion. I came across The Migraine Relief Guide some time ago. It's an e-book that people were asking about. I paid the $37.00 asking price for it so I could responsibly answer the questions I was receiving about it.

Well! Here's the hype from their web site:

Discover The Secret To Completely Eliminating Your Migraine
Pain Forever In The Next 48 Hours & Never Spedn Another Dime
On Expensive, Dangerous Treatments

Uh huh. Now, let me tell you what The Migraine Relief Guide really is. It's a 65-page pdf file. That includes the introduction, table of contents, etc. Chapter one doesn't even start until page 8. About the remaining pages:

  • Wome of the basic information is outdated.
  • The author, Elizabeth Hayden, calls herself an "Author and Migraine Expert," yet she lists types of Migraines and headaches not recognized by the International Headache Society's International Classification of Headache Disorders, the gold standard for diagnosing and classifying headache disorders.
  • In discussing causes and triggers, she uses the terms interchangably. Big mistake!

I could go on and on about this so-called book, but it's not worth the time or space. Of the parts of it that were reasonably accurate, there was not one bit of information that can't be found online FREE!

As if this book weren't already an insult to our intelligence, it appears that it's now being sold through affiliates. There are articles popping up on many web sites, supposedly articles about Migraines, that are nothing more than poorly disguised ads for people selling this useless pdf file. My advice to you? If you want to spend $37, go to Amazon.com. For that $37, you can buy a couple of GOOD Migraine books! You can even find some suggestions in the Amazon widget in the left column of this blog.

If you'd like to make a suggestion for a Migraine Pearl or a Migraine Onion, please leave me a comment!

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated January 26, 2011


Migraine Pearls or Onions? 1/20/11

PearlsOrOnions150x100 When it comes to online Migraine information, the quality of what we find has quite a wide range. It can be bright, polished, and valuable, or it can be... well, rough and stinky.

Today marks the beginning of a new feature here on Putting Our Heads Together, Migraine Pearls or Onions? This feature will highlight both the Migraine Pealrs I come across online and the stinky Migraine Onions.

So, first up... Yesterday, I came across a so-called article on a site name Allvoices. The article, by Debbie Nicholson, is entitled Headaches, Migraines Easily Handled. Obviously, the title itself is the first problem. "Easily handled?" Uh huh.

Nicholson states:

"The weather can cause those who endure migraines to suffer more when the weather is hotter. Do your best to avoid hot weather by using fans, air conditioning, going out when it is cooler and the sun is coming down"

Really? Where did she get that information? Can't tell since she cites absolutely no sources for her information. Many of us would disagree with her. Some would tell her that extreme cold is more difficult for us, some would tell her that weather changes are the worst problem, whether the weather is hot or cold. (Oh, and she left the period off the end of the sentence, not I.)

"...Blood vessels in the brain dilate and activate the trigeminal nerve, the main nerve involved with migraines."

Hmmmmmm. Guess she hasn't read the newer research that shows Migraine can occur with NO vasodilation.

There's really no point in listing more factual errors. The bigger point is that she writes as if Migraines really were "just headaches." The only treatments she even mentions are alternative treatments -- biofeedback, chiropractic, acupuncture, and herbs. These are viable treatments, but hardly the only treatments. Add to that the poor grammar, punctuation, and sentence structure, and a grade school child wouldn't even get a good grade if submitting this as a science or health report.

Thus, Nicholson and her article are hereby awarded my first Migraine Onion!

Now for today's Migraine Pearls... Today, my Migraine Pearls are my Facebook friends who, when I posted a link to NIcholson's article, went to the site and posted comments to let her know that the article wasn't just bad, it was unacceptable. To all of you who took part, you're the best!

If you'd like to make a suggestion for a Migraine Pearl or a Migraine Onion, please leave me a comment!

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated January 20, 2011


Migraine Research Foundation 2010 Research Grants

MRFLog Lack of adequate Migraine research funding is one of the biggest impediments to the development of new and better treatments for Migraine disease. The Migraine Research Foundation (MRF) was started by people determined to help change this situation.

Yesterday, the MRF announced the winners of their 2010 Migraine reearch grants. This year’s grantees will explore innovative inquiries in the areas of:

  • pediatric Migraine,
  • chronic Migraine,
  • Migraine in women, and
  • basic science.

For a list of the awardees and more details, see Migraine Research Foundation Awards 2010 Research Grants.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated January 19, 2011


Migraine and Medications Like Midrin, 1/16/11 Update

MidrinStatus100 For many years, Midrin has been used as a Migraine abortive medication. It's a compound medication consisting of three ingredients - isometheptene mucate, dichloralphenazone, and acetaminophen. There have been other medications with the same ingredients - Duradin, Epidrin, other brand name medications, and "generics" marked isometheptene mucate / dichloralphenazone / acetaminophen.

In 2007, the brand Midrin was unavialable for some time due to manufacturing problems. Recently, Midrin and many of the other medications with the same active ingredients have been discontinued, leaving Migraineurs scrambling to find relief. Last month, I contacted the FDA anout this issue and shared their explanation with you as well as outlining other Migraine abortive medications (see Midrin and Other Discontinued Migraine Medications).

The short version is that Midrin was developed before the current FDA approval process was put into place vai the Food, Drug, and Cosmetic Act as amended in 1962. The amendment required manufacturers to show that their drug products were effective, as well as meeting the requirement of the earlier Act, that the products must be safe. None of the companies manufacturing Midrin and similar medications had met these requirements. Recently many companies ceased manufacturing these medications to comply with FDA regulations.

Epidrin100 Because this impacts so many Migraineurs, I've been working to discover if any of the manufacturers are going to seek FDA approval to continue with these medications. I have good news to report. This week, I learned that Excellium Pharmaceuticals has indeed invested the millions of dollars necessary to demonstrate the efficacy and safety of their produce, Epidrin. They are applying to the FDA for approval, and Eipdrin will, hopefully, be made and shipped again by early spring.

Several Migraineurs have written to the FDA, and some have suggested that a campaign be started to flood the FDA with emails and phone calls about this situation. If such a campaign stood any chance of being successful, I'd be urging everyone to do so. However, the FDA's hands are tied on this. They cannot allow these medications to continue being made without going through the approval process because to do so would violation the law.

I fully understand that this creates a terrible hardship for those Migraineurs who cannot use other abortive medications because they have a history of or are at high risk for stroke and other cardiovascular conditions and events. I'll continue to investigage which, if any, other manufacturers are applying for FDA approval and their progress.

Stay tuned for more information as it becomes available.

It's a compound medication consisting of three ingredients - isometheptene mucate, dichloralphenazone, and acetaminophen.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated January 16, 2011


January 2011 Migraine and Headache Blog Carnival: Taking Charge in 2011

BlogCarnival125 Welcome to the January, 2011, Headache and Migraine Disease Blog Carnival!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the January carnival is "Taking Charge of Our Migraines in 2011."

Are you ready to read some great posts? Here we go...

The February 2011 carnival will be on the theme of "Romantic Relationships & Migraines: How are they affected? Is is possible to build a new one? Does anything about living with a chronic condition bring you closer?" Submissions will be due on Friday, February 11, and the carnival will be posted at Somebody Heal Me on Monday, February 14. You can submit entries by sending them to this email address or by using the blogcarnival.com website.

All of us wish you the very best in 2011. May we all have fewer Migraines and more joy.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011.
Last updated January 10, 2011.


Taking Charge of Migraines in 2011

2011TakingCharge Migraines often seem to control our lives, and that's simply not acceptable. Although there's no cure for Migraine disease at this time, there has been progress in research, and there are quite effective treatments.

This year, let's rededicate ourselves to taking charge of our Migraines! The first thing we have to do is realize this:

The person with the most at stake gets to be in charge.

When it comes to our health, WE are the person with the most at stake. Our doctors play an important role, but we have more at stake. We must work with our doctors as treatment partners, with our doctors making decisions WITH us, not FOR us. Does your doctor work with you this way? Are you making progress with managing your Migraines? If not, it may be time for a new doctor. For more about this, see Is It Time for a New Migraine Doctor?

Let's also take a look at some lifestyle and other health issues that can impact our Migraines:

  • Sleep. How's your sleep? Too much sleep, too little sleep, disrupted sleep, poor quality sleep, and irregular sleeping schedules can all be Migraine triggers. It's recommended that Migraineurs get up and go to bed at the same time every day, including weekends and holidays. If you're waking with Migraines, it's often a sign that a sleep issue is the trigger. If you've never discussed sleep with your doctor, now's a good time to make a note to do so at your next appointment. Here's a short video on this topic - Migraines, Headaches, and Sleep.
  • Nutrition and hydration. How are you doing with your eating patterns? Eating healthy meals on a regular schedule is important. It's also important to know if you have any food triggers. Some of us do, some don't. If you don't know, you can read about figuring it out and download a free workbook from this article - Managing Migraine - Migraine Trigger Foods. Dehydration can be a strong Migraine trigger. For some of us, even being a little bit dehydrated is a problem. Read up on this in An Avoidable Migraine Trigger - Dehydration.
  • Overall Health. When we're healthy, we're less vulnerable to our Migraine triggers. Do you see your "regular" doctor for a check up on a regular basis? If not, this is a good time to make an appointment and promise yourself that you're going to take better care of yourself. When you see your doctor, please ask him or her about what risk factors for stroke and other cardiovascular events and diseases you can reduce with lifestyle. These are called modifiable risk factors, and since Migraine puts us at increased risk of stoke and other cardiovascular events and diseases, it's important that we have this discussion with our doctors.

The importance of a strong support system is often overlooked, but it shouldn't be. It's vital that we have a good support system. That support system often gives us the strength to keep fighting. I know how damaging Migraines can be to our relationships. Part of taking charge of our Migraines is taking a good look at our support system, working to maintain relationships, forming new relationships, and possibly having to accept the weakening or even loss of some relationships. The damage Migraines can inflict upon friendships is something I understand from experience. For some help with this, please take a look at When Migraines Endanger Our Friendships.

Each of our situations is different. We have things in common, and ways in which we're different when it comes to Migraine management. Our needs are different, and our approaches will be different. I hope I've given you a start here. What are you going to do to take charge of your Migraines in 2011? Please, click the comments link below, and tell me.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011.
Last updated January 10, 2011.


Migraine Specialists: Do You Need One?

MigraineSpecialists166 How well does your doctor understand and treat Migraines? Unfortunately, medical schools still teach very little about Migraine disease. In some medical schools, what's taught is still old information that has now been abandoned by experts in the field.

Having the right doctor or doctors on our health care team is essential. We literally place our lives in their hands. Many Migraineurs have found that working with a true Migraine and headache specialist has resulted in better treatment and Migraine management than they've ever had before. For me, taking the step of going to a Migraine specialist was the real turning point in my controlling my Migraines rather than them controlling me.

At one time, I thought neruologists were Migraine specialists. Now, I've learned that neurologists aren't necessarily Migraine specialists, and Migraine specialists aren't necessarily neurologists. Neurologists are pretty much the general practitioners of all things neurological. When you think of it that way, it's easy to see that they can't possibly stay up-to-date on or be specialists in every disease, illness, and injury that they treat.

The good news is that there ARE doctors out there who truly specialize in Migraine and other headache disorders. They limit their practices to this field, and they participate in continuing medical education in the field.

It's not always easy to find a Migraine and headache specialist. There aren't enough of them, so sometimes, we have to travel a bit to see one. When I first realized I needed a specialist, there wasn't one in the entire state of West Virginia, so my husband and I traveled eight hours, each direction, to the Jefferson Headache Center in Philadelphia so I could see Dr. WIlliam Young. It was worth every mile, every minute, every dollar.

So many people ask me for help in finding a specialist that I maintain a listing of recommended specialists. All of the specialists on the listing have been recommended by their patients or by another specialist whom I know and whose judgement I trust. I don't put specialists on this listing because they ask to be added. I DO check the medical license of each of the doctors included in the listing at least once a year.

Do you need to find a specialist? I've just updated our listings and have added several doctors. You can look for a specialist in Recommended Migraine and Headache Specialists.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011.
Last updated January 5, 2011.