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Interesting, but Not About Migraines

Contrary to how it may seem at times, I do think about things other than Migraines and headaches. ;-)

A friend sent me a link to a YouTube video that I found fascinating, so I thought I'd share it with you. As I watched it, I couldn't help marvel at the mind that could make all those connections...

 

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© Teri Robert, 2011
Last updated February 28, 2011


The Migraine Research Foundation & the ING NYC Marathon

ING-NYC-Marathon The Migraine Research Foundation (MRF) has the opportunity to participate in this year's ING New York City Marathon Community Charity Program. To participate, they need to have runnders who can commit to both running and geting pledges for donations.

The race is November 6, 2011. If you're a runner (or know one) who would like to represent the MRF and can pledge or sign up others to pledge or donate $2,500, please let the MRF know by Monday, February 25, 2011. The do not need a firm commitment at this point, only an expression of interest.

If you're interested please contact the MRF:
email: events@migraineresearchfoundation.org with "Marathon" in the subject line or
call 212-249-5402.

Thank you!

Live well,


 

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© Teri Robert, 2011
Last updated February 25, 2011


Migraine Pearls or Onions? 2/23/11

PearlsOrOnions125 When it comes to online Migraine information, the quality of what we find has quite a wide range. It can be bright, polished, and valuable, or it can be... well, rough and stinky.

This feature, "Migraine Pearls or Onions?," highlights both the Migraine Pearls I come across online and the stinky Migraine Onions.

Pearl100 So, first up...today's Migraine Pearl... the American Heart Association and their Go Red for Women campaign. At first thought, this might not seem related to Migraine, but it is. When we look at effective Migraine management, we can't underestimate the importance of good overall health, and heart health is very important in that context. Additionally, having Migraine disease increase our risk of developing cardiovascular disease or having a cardiovascular event. One of the best things we can do for our overall heatlh as well as Migraine health is to have a heart-to-heart (pun fully intended) conversation with our doctors about our risk factors for cardiovascular disease, and what we can do to reduce our modifiable risk factors.

For more about this, please take a few minutes to read Migraines and Our Hearts - Are You Wearing Red Today? Wear Red day may be over, but this is still National Heart Month, and this is always an important topic.

Onion100 Now, on to today's Migraine Onion. Dr. Andrew Jones of the Women's Health Institute. Sigh. Jones's web site used to actually guarantee a Migraine "CURE." He doesn't use "the C word" these days, but his web site does promise...

"This ALL NATURAL TREATMENT Means the End To Migraine Pain Forever."

Uh huh. Give me a break. Anyone who says that has no respect for Migraineur. This man either things we're fools, or he's counting on our being desperate enough to try anything. The bottom line is that there is NOTHING that can end Migraine forever. NOTHING. What makes this more reprehensible is that Jones is actually a doctor. I checked. The man does have a valid medical license.

I'm not going to even say anything more about Jones or the "treatments" he sells. The bottom line is that when someone says they can "cure" Migraines or "end Migraine pain forever," walk away, click away from their web site, delete the email, whatever. It's simply not true. Don't reward these poeple by buying products that can't possibly totally eliminate or cure a disease for which, at this time, there is no cure. Instead, find a good Migraine specialist to work with and explore the real treatments that are available.

If you'd like to make a suggestion for a
Migraine Pearl or a Migraine Onion,
please leave me a comment!

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated February 23, 2011


Urgent: Take Action Now to Protect Migraine Research

Capitol As you may know, the Alliance for Headache Disorders Advocacy has been working to get NIH funding for Migraine and other headache disorders increased. Today, we find that not only is the work we've been doing in danger, but all NIH funding is in question.

We sent out an action alert today asking people to take a few minutes to email their members of the House about this issue. Here's the email we sent:

Today the House of Representatives is debating an immediate and unprecedented $1.6 billion cut to the budget of the National Institutes of Health. These proposed reductions are a serious threat to our nation's health and the prospects for improved therapies for migraine and other disabling headache disorders.
 
The cuts are also harmful to our economic competitiveness. More than 83% of NIH funding is spent in communities across the nation, creating jobs at more than 3,000 universities, medical schools, teaching hospitals, and other research institutions in every state.

Contact your member of the US House of Representatives TODAY and tell her/him that funding for health research is vital to curing diseases, generating jobs now and in the future, and securing the economic well-being of America.

Oppose the cuts to NIH now!

Thank you.
 
Sincerely,
Robert E. Shapiro, MD, PhD
AHDA President

We've prewritten a letter to go to members of the House. There's a space left to add your own comments if you wish. Once you've entered your name and address, the system we use automatically finds your Representative and sends the email for you. It's so simple that it can be done in five minutes or less, literally.

This alert is now expired. Thank you for your interest.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated February 18, 2011


Migraine Pearls or Onions? 2/15/11

PearlsOrOnions125 When it comes to online Migraine information, the quality of what we find has quite a wide range. It can be bright, polished, and valuable, or it can be... well, rough and stinky.

This feature, "Migraine Pearls or Onions?," highlights both the Migraine Pearls I come across online and the stinky Migraine Onions.

Pearl100 So, first up...today's Migraine Pearl... the National Headache Foundation (NHF). The NHF's mission, as stated on their web site, is "to enhance the healthcare of headache sufferers. It is a source of help to sufferers' families, physicians who treat headache sufferers, allied healthcare professionals and to the public. The NHF accomplishes its mission by providing educational and informational resources, supporting headache research and advocating for the understanding of headache as a legitimate neurobiological disease." (Yes, I know that I've been telling you for 10+ years that Migraines aren't headaches, but please overlook the fact that then NHF often uses the term "headache" to mean headache and / or Migraine. Migraine is classified as a headache disorder, and referring to Migraines as "headaches" is a hard habit to break.)

This year, the NHF is making a huge effort to bring Migraine and headache education to both patients and medical professionals by holding regional conferences themed around "Bridging the Gap Between Patient and Physician." There are four of these regional conferences scheduled for the first half of 2011. You can find the schedule and more information in NHF Schedules Regional Migraine and Headache Conferences. You can learn more about the NHF on their web site, www.headaches.org. A big "Bravo!" to the NHF.

Onion100 Now, on to today's Migraine Onion. This one isn't online, but it's directly related to the need for better public awareness about Migraine. I've been fuming about this for a few weeks, so I'd better just award this guy a Migraine Onion and get it out of my system.

A few weeks ago, I stopped at the pharmacy to pick up a few things. I was in the pain reliever aisle getting some acetaminophen and noticed a woman who really looked unwell. She was holding a bottle of OTC meds in each hand and looking back and forth between them, seeming pretty confused. She dropped one of the bottles, and I picked it up and handed it back to her. She thanked me and went on to say that she was having a Migraine that was making it hard to read the labels on the bottles.

Before either of us could say anything else, a man standing close to us interrupted, saying, "You hens and your headaches. If you'd quit your bitchin' about 'em and get to work on something, they'd go away." Well! As you can imagine, I was ticked. The poor woman stood there with a bottle of OTC pain relievers in each hand and started crying.

Fortunately, I'm seldom at a loss for words and always have both business cards and educational materials about Migraine in my bag. I whipped out a letter that explains that Migraine is a disease and handed it to him. Then I told him that since his parents had obviously never taught him not to judge other people and not to talk from ignorance, I'd be glad to pick up the slack. He started to say something, but I quite rudely interrupted him and suggested that he think very carefully before saying anything more. He wandered away, shaking his head. A woman joined him a short distance away, and I observed a rather animated conversation between them that included the man gesturing and pointing at me. The woman, whom I guessing might well have been his wife laughed, looked at me, and flashed me a thumbs-up.

So, the jerk at the pharmacy gets today's Migraine Onion, and his wife gets my sympathy.

If you'd like to make a suggestion for a
Migraine Pearl or a Migraine Onion,
please leave me a comment!

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated February 15, 2011


Migraine Chat - Every Wednesday

MigraineChat225 Living with Migraines isn't easy. There are, of course, the medical issues of living with Migraine disease; but there are other issues too. Issues with family, work, freinds, getting medical care, dealing with insurance companies, and so much more!

Sharing information and supporting each other is priceless. You never now when you'll learn something from another Migraineur that's very helpful OR when you know something that can help others. There's aslo a great deal to be said about spending time among people who really "get it."

To that end, Diana Lee has set up a weekly online Migraine chat to be held every Wednesday at 6 p.m., central time.

To participate in the chat sessions, go to http://www.chatzy.com/239212172661. You'll want to bookmark the page so you can return to it easily. The password is easy. It's the name of Diana's blog, somebodyhealme.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated February 14, 2011.


Migraines and Romance: February Blog Carnival

BlogCarnival125 Welcome to the February, 2011, Headache and Migraine Disease Blog Carnival!

and

Happy Valentine's Day!

The Headache & Migraine Disease Blog Carnival has been created to provide both Migraine and headache patients and people who blog about Migraines and headaches with opportunities to share ideas on topics of particular interest and importance to us.

The theme of the February carnival is "Romantic Relationships & Migraines: How are they affected? Is it possible to build a new one? Does anything about living with a chronic condition bring you closer?"
 

Check out this month's great collection of blogs in Migraines & Romantic Relationships: February 2011 Headache Blog Carnival.

Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

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© Teri Robert, 2011
Last updated February 14, 2011


NHF Schedules Regional Migraine and Headache Conferences

NHFLogoGreen150 The National Headache Foundation (NHF) has scheduled four regional Migraine and headache educational conferences for the first half of 2011. Each of the three conferences has a session for patients and a session for physicians, designed to help both learn more about Migraine and other headache disorders.

The four conferences set so far for 2011 are:

Saturday, March 5, 2011 in Augusta, Georgia
Fighting the Battle Against Post-Traumatic Headache and Migraine

Doubletree Hotel & Conference Center
2651 Perimeter Parkway
Augusta, GA

  • Listen to National Experts in Headache Treatment
  • Interactive Breakout Sessions
  • Learn of Available Resources
  • Share Your Headache Trials & Successes with Others Who Understand
  • Free One Year Membership to the NHF
  • Reception with Beverages and Appetizers

For more information on this conference for patients, CLICK HERE. For more information on this conference for physicians, CLICK HERE.

* * * * * *

Saturday, March 26, in St. Louis, Missouri
Bridging the Gap Between Patient & Clinician
An Educational Program for Individuals with Migraine or other Headache Disorders

Sheraton
St.Louis City Center Hotel
400 S. 14th Street
St. Louis, MO

  • Registration is $20 for you and a Guest (First 200 registrants will attend free compliments of the NHF)
  • Listen to National Experts in Headache and Migraine Treatment
  • Learn of Available Resources
  • Share Your Headache and Migraine Trials & Successes with Others Who Understand
  • Free One Year Membership to the NHF
  • Take Charge of Your Headaches and Migraines
  • Build Effective Communication with Your Healthcare Provider
  • Empower Yourself to be the Expert on Your Headache and Migraine Treatment
  • Get Your Questions Answered
  • Join us for Beverages and Appetizers at our Closing Ceremony

For more information on this conference for patients, CLICK HERE. For more information on this conference for physicians, CLICK HERE.

* * * * * *

June 11 in Houston, Texas
Bridging the Gap Between Patient & Clinician
An Educational Program for Individuals with Migraine or other Headache Disorders

Sheraton
15700 John F. Kennedy Blvd.
Houston, TX

  • Registration is $20 for you and a Guest (First 200 registrants will attend free compliments of the NHF)
  • Listen to National Experts in Headache and Migraine Treatment
  • Learn of Available Resources
  • Share Your Headache and Migraine Trials & Successes with Others Who Understand
  • Free One Year Membership to the NHF
  • Take Charge of Your Headaches and Migraines
  • Build Effective Communication with Your Healthcare Provider
  • Empower Yourself to be the Expert on Your Headache and Migraine Treatment
  • Get Your Questions Answered
  • Snack Bar
  • Evening Closing Ceremony

For more information on this conference for patients, CLICK HERE. For more information on this conference for physicians, CLICK HERE.

* * * * * *

June 25 in Chicago, Illinois
Bridging the Gap Between Patient & Clinician
An Educational Program for Individuals with Migraine or other Headache Disorders

Chicago Marriott
Downtown Magnificent Mile
540 N Michigan Avenue
Chicago, IL

  • Registration is $20 for you and a Guest (First 200 registrants will attend free compliments of the NHF)
  • Listen to National Experts in Headache and Migraine Treatment
  • Learn of Available Resources
  • Share Your Headache and Migraine Trials & Successes with Others Who Understand
  • Free One Year Membership to the NHF
  • Take Charge of Your Headaches and Migraines
  • Build Effective Communication with Your Healthcare Provider
  • Empower Yourself to be the Expert on Your Headache and Migraine Treatment
  • Get Your Questions Answered
  • Beverages and Appetizers

For more information on this conference for patients, CLICK HERE. For more information on this conference for physicians, CLICK HERE.

Please call the toll-free 1-800-843-2256 to register
or email info@headaches.org for any questions regarding the Regional Conferences.

Awareness2011-400
Live well,


 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

Follow me on    or 

 

 

Page copy protected against web site content infringement by Copyscape

© Teri Robert, 2011
Last updated February 14, 2011