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October 2012

I'm an Open Book About My Migraines

OpenBookBenchTalking about Migraine disease isn't always easy. Sadly, there's still a great deal of stigma surrounding Migraine, and that can make it more difficult. Migraine is also very much still misunderstood, with lots of myths and misinformation still coloring people's perceptions and behaviors toward us.

Despite all of that, I'm very open about having Migraines, what they're like, the problems they've caused, and the limitations they still impose upon me. There was a time when I tried to avoid talking about my Migraines, like they were some kind of dirty secret, but that was long ago.

I'm not sure if my attitude has developed with age or as some form of self-defense, but my attitude now is that anyone who doesn't understand and chooses not to learn what they'd need to learn to understand doesn't need to be part of my life. It simply makes sense to me that life is better and easier when the people who are part of our lives bring positive energies into the relationship, and we care about each other.

Some Migraineurs feel that we sometimes lose friends because of our Migraines, but I view it another way. Migraines and other illnesses or adversities reveal those who are true friends. True friendships are two-sided, and we don't lose true friends over an illness. We need to recognize that there are times when we're good friends to people who are not good friends to us.

Work and the relationships there are more difficult. Sometimes, we don't have any choice other than managing to get along with people who are unkind or downright hostile. I'm very fortunate that my job is writing about and teaching others about Migraine, AND that my bosses really understand what living with Migraine can be like. They understand when they can't reach me during the business day. They get it that I need to arrive a day early and stay a day later when I travel.

When I talk about Migraines, I do my best to always have the most current information for people. There's much about Migraine that scientists still don't know, and new information comes to light regularly. As far as talking about my own Migraines, that's a long story since I've had Migraines for over 50 years. I'll gladly share anything people want to know, but try not to get into long, long stories.

People fear things that go bump in the dark. To reduce the stigma, misconceptions, and stereotypes surrounding Migraine disease, we must bring it into the light and keep it there.

This is my entry for the October, 2012, Headache and Migraine Disease Blog Carnival, which can be found on SomebodyHealMe.

Live well,

PurpleRibbonTiny
 

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© Teri Robert, 2012
Last updated September 10, 2012.


Migraine Pearls or Onions? 9/6/12

PearlsOrOnions125The Internet can be an amazing source for information about Migraine and other headache disorders. Unfortunately, it can also be an amazing source of MISinformation.

The information we find online can be bright, polished, and valuable — like a pearl — or it can be... well, rough and stinky — like an onion.

This feature of my blog, "Migraine Pearls or Onions?" highlights both the gleaming "Migraine Pearls" I come across and the malodorous "Migraine Onions."

Pearl100Today's Pearl goes to chronic Migraineur and blogger "migrainetalktee" for her wonderful post UK MIgraine Awareness Week — Migraine Management — Medications & Treatments

In this post, Tee does a masterful job of explaining abortive and preventive medications, trigger avoidance, and much more. This is the perfect post for Migraine Awareness Week in the U.K. Brava, Tee!

Onion100Today's Onion goes to The Port Lavaca Wave, an online newspaper for Port Lavaca, Texas, and Dr. Tim Holcomb for the article Migraines — treat the cause, not just the curse. According to the site, Holcomb is a nutritional pharmacist and a chiropractic neurologist.

My problem with this article is that Holcomb obviously doesn't know much of anything about Migraine, and the article adds to the MISinformation about Migraine that already abounds online. Here are a couple of examples from the article:

Holcomb says, "A migraine is vascular in origin, where the blood vessels in the brain are excessively dilated." The problem with this — It's an old theory that we now know to be incorrect.

Holcomb also writes, "Before the pain begins, there is a prodrome, characterized by hallucinations, visual disturbances, light sensitivity, impaired thinking, and nausea." The problem with this — Several of these symptoms don't occur during prodrome, but during the aura phase.

Holcomb goes on to talk about Migraines being caused by a communication problem between the brain and upper digestive system, offering no source or proof for his statements.

All in all, Holcomb needs to pull this article and not write about Migraine again until he learns more about it. It's bad when anyone writes and publishes incorrect information. To me, it's worse when it's someone who's supposed to be a doctor.

I posted a comment to the article also, suggesting that he visit the site of the American Headache Society and check out their options for continuing medical education. If you agree that this article is horrible at best, I hope you'll post a polite comment letting Holcomb and The Port Lavaca Wave know that it's not acceptable. The article is Migraines — treat the cause, not just the curse.

Live well,

 

 

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Page copy protected against web site content infringement by Copyscape© Teri Robert, 2012.
Last updated September 7, 2012.


Some People Deserve to Experience a Migraine - Video

WomanBoxingBlack150Good afternoon, my Migraine family and friends! I hope this day finds as many of you as possible free from pain and doing well.

There are more than 37 million of us in the United States alone who have Migraine disease. Many of us really struggle with Migraines. Approximately 3.2 million Americans have chronic Migraines, which means they have a Migraine or headache at least 15 days a month - or more often than not.

For many, many years, I believed and said that I wouldn't wish a Migraine on my worst enemy. Over the years, the unbelievably callous attitudes of people have changed my mind. There ARE people upon whom I'd wish a Migraine.

This afternoon, a Google alert caught my attention and led me to some of those people. The alert led to this video:

As the video went on, did you notice laughter in the background? Did you notice that the guy on the right was laughing so hard he could barely stand? What jerks! Have they ever felt a moment of pain in thier lives?

So, yes, I DO wish a Migraine on the people who created that video. What's more, I wish those who find it funny could experience just one severe Migraine so they'd know what we experience. I'd bet they wouldn't find it so damned funny any longer.

I don't get it. Is the world going to hell in a hand basked as the old expression goes or what? We have innocent people being gunned down in movie theaters and people who are so stupidly self centered that they can't recognize the pain and suffering of others. Obviously, I can't begin to address the problems of the world, but you can bet I'm going to stand up and object when I see such cruelty and stupidity show about Migraine and those who live with it!

To those of you who are working to help others, God bless you! To those of you doing things such as this video -- Look out. Karma's a bitch!

Live well,

PurpleRibbonTiny
 

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Get the latest Migraine and headache news, informational articles, tips for living well, and more in my free weekly newsletter. To subscribe, CLICK HERE.

Follow me on    or 

 

Page copy protected against web site content infringement by Copyscape

© Teri Robert, 2012
Last updated September 2, 2012.